Multiple Sclerosis (MS) Support Group
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i was invited to go to disney next year with my boyfriend's family, when the summer is at it's hottest. realistically, i dont think there is any way i can go. i have until the winter to finalize my decision, i keep saying 'oh sure!' but i know i can't
my boyfriend knows i have ms, but his parents don't. i would have to rest every couple hours, and i'd be bringing alll my medicines etc. with me - so my ms would be impossible to hide.
heat is just too much to deal with and the whole situation is stressing me out a lot. i skipped going on vacation with my family this year, since it was hot, and that was vacation waaay north of florida
sorry for rambling but i have no idea how to handle this situation, i like my ability to keep the knowledge that i have ms away from people, because it lets me be seen as 'normal', and i actually get cut more slack that way when i need to rest, etc.
my boyfriend knows i have ms, but his parents don't. i would have to rest every couple hours, and i'd be bringing alll my medicines etc. with me - so my ms would be impossible to hide.
heat is just too much to deal with and the whole situation is stressing me out a lot. i skipped going on vacation with my family this year, since it was hot, and that was vacation waaay north of florida
sorry for rambling but i have no idea how to handle this situation, i like my ability to keep the knowledge that i have ms away from people, because it lets me be seen as 'normal', and i actually get cut more slack that way when i need to rest, etc.
Hugs
I read your vacation post. We are planning a trip to Disney this Jan and my hubby was dx RRMS 8 years ago (by the time we go). We are going to use Walker Medical for $30 a day electric wheelchair (Disney charges $50 a day for theirs). We got him a cooling vest and I am getting him a Hula cooling hat when they come back in stock. The first aid areas in Disney said they would take the cooling packs (marked with our name/cell #) so as he is using some of the packs the others are freezing so we can change them out every 3 hours. We are staying ON SITE at "All star Disney hotels" so that he can just take the bus back to AC room after lunch at about noon. Then stay and rest in the heat of the day until 4:30 when he can use the chair to get on bus and then meet us at pre-planned dinner restaurant at a little after 5pm when it is cooler. Heck a few of those days we may come back and join him while the kids nap or use the hotel pool.
So in summation we are doing the following to make it easier on hubby
1.) Walker Medical for $30 a day electric wheelchair
2.) cooling vest / hat
3.) ON SITE hotel (All star hotels cheapest) so he can use chair to bus and hotel to rest in heat of day. The rest of us can join him if we are pooped or stay as we please
It is your decision if you want to tell your in-laws but if you do there are things you can do to enjoy the trip.
Best wishes no matter what you decide,
EP
Not telling about your dx, puts a lot of pressure on you. If they knew ,you could go with above recommendations, otherwise you'll have to miss on the fun. If you don't tell and go, what are you going to do if you need medical care.
My daugther was 17 when dx, we told everyone around her in order to keep her safe. I was more concern on her safety, than what people could think. Amazingly, her friendship bonds got stronger and all school personnel assisted her when needed.
I tell about my dx to everyone for the same reasons. Also I told her if she met a boy interested in her, tell, before you invest your heart. She did, her bf knows plans are adjustable, they always have plan B. He seems ok , relax , around all this adjustments. They do all things young people do, with reasonable accommodations.
Alma
EPagain advice. You'll have a great time!
I go to Disney in July (my husbands choice, not mine) every year. Ive been diagnosed since Jan 1987. I have not had too much trouble thus far, and I have heat - MS issues. Seats, AC when too hot and just plain staying back during the heat of the day (3:00 pm this year). And of course I had to use a wheelchair. And lots of water.
I find joy of being with loved ones a good remedy for the downside of Fla in July.
You know your MS, and only you can judge, but for me, Ive made it work for years. My MS had gone down hill a little each year yet I still go.
Be honest with yourself, your boyfriend and family. But if you do go, have fun!
Sunny smiles to you!
LvAmy