Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

0 Online

Squeemom2 10/30/2012

In addition to heat sensitivity is anyone else really adversely affected by cold weather? I had a bad experience this weekend. I went to a Halloween party. I wasn't dressed appropriately for the weather. I had a coat but was wearing a long silky robe (I went as Mommie Dearest...NO MORE WIRE HANGERS!!!). The longer I was out in the cold the more I tensed up. The more I tensed up, the more difficult it was to walk and control my movements. I drove myself home despite my better judgement and by the time I landed on my couch I was uncontrollably twitching/jerking (legs, arms, hands, neck...pretty much my whole body) and could not warm up. The twitching and my inability to warm up lasted about an hour after I got home. It was terrible. Anyone else have a reaction like this to cold weather? I can remember some similar experiences from last winter but nothing that extreme.

deleted_user 10/30/2012

Hi there,

I'm in the same boat as you. I'm both heat, and cold sensitive. I find when I go outside, even if it's not that bad, I'm so beyond cold, and sometimes it doesn't even matter how many layers I'm wearing. The cold it feels gets into my bones, and my legs, and lower/upper back tense up as well. Usually when I come inside, I get a "cold chill" where my whole body will jerk...

I like to try and keep those hand warmer things near by, so I can always slip a pair into my boots, and/or mittens.

Hope the winter is a mild one for you!

almairis 10/30/2012

Hi

How awful, never do that again. My thermostat is also broken. Heat sensitivity and cold too. I think that one comes from thyroid problem. When I get out from bed in the morning and that cold hits me, my whole body decides to freelance independently,,, lol

Shivers, spasms, shake, it's a party until I drink something hot and adjust the ac for warmer temps.

So drinking hot liquids helps me

Alma

ezone 10/30/2012

The cold causes the spasticity to go into overdrive. I have to dress accordingly. I couldn't go to a Halloween costume party unless I could be dressed appropriately for the weather.

Yes, I understand the thermostat problem.

Xeria 10/31/2012

yes, the last two years I've developed a sensitivity to cold - before that it was 'only' heat. I get extremely stiff , end up doing a fantastic Frankenstein impression.

deleted_user 10/31/2012

Yes, cold is awful for me. I do have Raynaud's though, so that contributes. When they did the testing for Raynaud's at the vascular center, they do a doppler thing on each toe/finger, and then you have to sit with your foot or hand in a bucket of ice water for 2 minutes, then they test it with the doppler thing again. It was pure torture!! But, when they did my feet she had a hard time getting the results on my toes because my legs kept jumping and jerking around. The cold makes my muscles just twitch like crazy.

deleted_user 10/31/2012

Hi, me too! I agree with xeria, cold weather makes me move and walk like a drunk frankenstein. The colder I am the more my body seizes up and makes movement difficult. Heat makes me wobbly and cold makes me spastic and stiff. A nice steady 73 or 74 degree temp. would be great but not gonna happen. I wish us all a mild winter.

Join the Conversation