Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This is one of the most annoying things about MS. I'm still new to MS, so I look "normal." I don't think the people around me "get it." Go figure...
At least you guys/girls "get it!"
I was having some pretty bad memroy loss,and I cant think as quickly as before.
I did a neurophyscology test,and it showed I Have working memory loss,short term memory loss,consintration issues,mood disorder,anxiety,depression.
If this has become a problem for u,then ask your neuro to order a neurophyscolgy eval.
It will help u out to learn what problems U do have,and plus help out with you Disabiltiy clam..
good luck,
aly
I too suffer from cognitive issues. A couple years ago I had to have a Psyche Evaluation done to see just how bad the problems were. I was shocked at how much i'd lost cognitively. Some days are better than others cognitively. It changes with stress, and the summer heat, etc. Some days I surprise the heck out of myself at what I can accomplish cognitively, and other times I get so frustrated with myself. Mine was so bad, that I was afraid I had alzheimers, but I was assured that it was NOT alzheimers. Thank God. It's just one of the ways my MS effects me. To look at me you'd never know. But........I know :-(
How does it effect you?
Hugs,
Kat
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Depression
-Autoimmune disease = increased risk of depression (neurochemistry findings)
-20% of people w/MS suffer from depression
-50% of people w/MS will suffer from depression in their lifetime
-depression may worsen if not treated, but is also one of the more treatable symptoms of MS.
-term for a symptom of depression: anhedonia = lack of enjoyment
-depression vs. grief = grief hurts, depression disconnects, grief can be worked through, depression cannot.
-most recent research finds no relationship between interferon meds & new onset depression (interferon gamma for Hepatitus-C does increase risk)
COGNITION AND MS
Areas of neuropsycological functions impacted by MS:
-speed of processing
-attention & concentration
-language
-memory (recall, taking longer to memorize things)
-visual/spatial processing & memory (getting lost driving; right-left confusion; problems assembling things from diagram/instructions; difficulty in understanding how machines work, i.e., cell phone, microwave, VCR,; trouble judging differences between objects like when parking a car;trouble visualizing an object from a verbal description of it)
-executive functioning (this means multi-tasking, decision-making, organizing & communicating information)
From the pamphlet: "Only a few decades ago cognitive impairment was considered rare in MS. We now know that 50-65% of people w/MS have some cognitive problems. While most symptoms are mild to moderate, they can have a significant impact on a person's ability to function comfortably."
-presentation for Alzheimers & MS are VERY different
-cognitive impairment "waxes and wanes"
-steroids can cause cognitive impairment
Factors that impact cognitive function:
-Sleep
-Depression
-Fatigue
-MS
Brain atrophy (shrinking): all brains experience atrophy, the rate of shrinkage is faster w/MS sufferers. CRABs protect against atrophy.
Do you think you are having cognitive problems? It is important to determine what is causing the cognitive impairment; is it fatigue? Is it sleep disorder? Is it depression?
To determine whether you are experiencing cognitive problems, you can have a neuropsychological testing assessment. Problem: expensive, time consuming (takes approx. 8 hrs), emotional.
CBT = Cognitive Behavioral Therapy
This therapy helps you manage your anxiety and adaptive coping skills, for example:
Appraising the problem --> controllable?-->problem focused strategy--> less stress
Appraising the problem -->not controllable?-->emotional focused strategy--> less stress
The important aspect of CBT is that it reduces the stress you feel when experiencing a cognitive issue. The more you notice your cognitive problems, the more it happens-- because stress aggravates the symptoms.
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my cognitive issues no longer allow me to multi-task. i spend alot of time getting frustrated over things. also i feel alot of guilt especially with my husband, i feel like he is cheated out of having a wife with a good head on her shoulders anymore. he has to take care of more business issues because i don't get all of the info or ask the right questions and that's even writing the info down. i never get things straight, it's so frustrating. i feel like everyday i lose a piece of me and so does he!
couldn't find the car...i give up!