Multiple Sclerosis (MS) Support Group
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I got the results of my latest MRI. NO new lesions for almost two years now. I am thrilled! My doctor has been keeping on top of my progress because I cannot tolerate the traditional meds for the MS. He agreed to give me the LDN and told me that although it has not been clinically trialed for MS, it does stop any progression of it.
I just wanted to share good news with you all, I have certainly cried and complained enough in the past here. I am so glad this site is here. I have just come back after a long absence, trying to get a life again. This site helped me immensely in the beginning, so it's time I give back now.
'
Hang in there, everybody. Maybe, just maybe we will acutually see the cure in our lifetimes.
Love to all!!!!!!!!!!!!
I just wanted to share good news with you all, I have certainly cried and complained enough in the past here. I am so glad this site is here. I have just come back after a long absence, trying to get a life again. This site helped me immensely in the beginning, so it's time I give back now.
'
Hang in there, everybody. Maybe, just maybe we will acutually see the cure in our lifetimes.
Love to all!!!!!!!!!!!!
dxat59
That's great news! Thanks for sharing.
lchoppel
It's great to hear some good news. Welcome back, and good luck with the LDN. Keep us posted on how well you do. I understand the first few months can be rough.
deleted_user
Good for you! :) Please read my profile and give me your opinion. Thanks so much!
MSInterrupted
Congrats! Great to hear!
STEVP
Its always great to hear the good news as well! This pointsout that MS is not 24/7 gloom and doom. Glad your MRI came out clean, Congrats!!
deleted_user
yes!! i was told there is another pill- its in phase 4 now- but maybe next year- i think they are closeing in on it!!
deleted_user
Tickey - I have been involved in clinical trials most of my adult working life (on the bad side of Big Pharma I am afraid - hey it was a living) and Phase III and the IND and NDA to the FDA and out to the public - what is phase IV? Do you know the name of the drug or # they go by and whose drug it is? If so I can find out what truly is going on with it and I would be ELATED if this really was the case. Enough already with the DMD's and side effects it truly is time for a cure!
AusSue
Thanks for such a positive post & congratulations on your good Mri. Its always great to hear of something that has worked for someone too.
deleted_user
so wonderful to hear great news...many hugs!! connie
dxat59
I'm sure many of us would like to know but if it is not approved for use for MS, it's not covered by insurance so what is the cost of LDN?
melaniemic
thanks to all for your kind responses and support. Ths site is so good for us all. For those that have asked, my LDN is compounded into a liquid that I take. 3.5 mgs in 1ml. It only costs 27 dollars a month. Medicare won't pay for it because it is a compounded drug. Still, that is affordable for me, even on my piddly SSD. Sure beats the alternatives. Thanks again to all. Best to you all/
deleted_user
It's great to hear some good news. Congratulations!
CW2008
Congratulations! It's nice to hear some good news and welcome back. I'm still fairly new here and it really is a great community we have on this forum. Everyone is so helpful.
deleted_user
CONGRATS! :-) Thanks for sharing something postiive to brighten our day!
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