Multiple Sclerosis (MS) Support Group

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ricanfemale30 03/30/2012

Wat the hell man...i kno ive bitched bout this before..but damn i would like for once to have something to do on a friday nite!..geez my bf usually goes wit his boys for a nite out bout boring things like cars ( for a chick its wack lol) so i wind up staying..yo the boredom is beyond anything..i need to be doin something..i used to always be out on the weekend..now pssshhh its me n some good budd n movies..i get so pissed off!!!! Dammit this sux..n i realized today that i get so pissed off cuz i havnt accepted that weekend nights dont exist anymore!!! ugh..yes i have netflix..playstation..movies tv budd food..but theres nothing like human company..ugh...i guess thats y when my bf said he was goin out tonite i wasnt surprised..i realized jack this is ur fri nites from now on lol ugh i fully believe i will drive again and will have my health again..but at the same time its like who am i kidding..ugh just pissed..

almairis 03/31/2012

Hi, I hear you girl!!
Sometimes when I feel like that, I have my own party, all by myself. I turn off the tv, take a shower, play loud dancing music, waddle to it, LOL sing out loud, have something to drink only two drinks max, Ohhh so tired, no witnesses, good I'm home, bed is near. Being silly, dancing funny, with the walker, screaming a song, sometimes help.
Alma

deleted_user 03/31/2012

People don't come around much, they don't call much, they don't listen to me much when they do call or come around, and I spend 99% of my time alone in a room in a bed. I feel your pain HUG

I think sometimes that MS is the loneliest disease. Often I push hubby to go out without me (he loves when I come along and gets sad if I can't) just because I don't want him to suffer like he's also sick. If I can't go out then at least he can...

At the same time I don't blame people. Who wants to hang out with a cripple who can't go most places or tolerate most stimulation? I'm heat, light, sensory sensitive...I have trouble walking, eating most things, and I forget almost everything LOL

I say smoke that awesome bud and make some art--that's what I do. It's a good thing I've always been a hermit and never really had friends--good training for the last 6 yrs and the rest of my life.

dxat59 03/31/2012

I feel like I was kidnapped and transferred to a prison where I am in solitary and only allowed to watch my former life through a monitor. It's already getting hot early this year which means I won't even be able to sit outside much longer. What kind of life is this?

Gentle hugs, Linda

deleted_user 03/31/2012

My time with my two best friends has slowed down. I'm busy with my girls and when I have time to go with them, I'm exhausted or simply don't want to try and drive. They usually come to my house to see me, which makes me feel guilty. I've become a home body but I get lonely during the day, home alone and I'm not productive. After a few days of being inside, David gets me out of the house to ride with him running errands, meeting with clients and such.. And some days, he'll take me here and there (places I wanna go) b/c he knows I'm going crazy in this house.. We call those my MS Outting Days.. I tell him people better be nice and get out of my way !!!! We joke that I'm gonna get a T-shirt made that says " Hi, I'm Stacey. I have MS and this is my day out so BE NICE and GET OUT OF MY WAY" bahaha..

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