Multiple Sclerosis (MS) Support Group

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ilotusflower 06/02/2010

I am confused!!!

Were to start...about 5 months ago I started to vomit for no reason ( not often but often enough to notice) and as the months went by that became more often. I already have some bowel issues due to MS...I have lost the feeling of pushing when taking a poo...plus I have to take miralax every day other wise I will not be able to go. Anways...on top of all that now i cant keep any food down. It feels like my food just piles up in my tummy till when it comes to dinner and there is no more room so it all comes up (everything from all day) and my stomach hurt all the time. Now I feel soooooo weak...I went to see my GI Dr and he is worried and I am having a colonoscopi and endoscopi, really worried about my ileocecal junction. I know I have heard on here before that people have vomiting issues...but is this really an MS thing or is it something else. I think I am wanting it to be something else....cause then they may be able to fix it? seems like if its MS then...I will have to just deal with it. And another thing...I never know which Dr to call anymore...GRRRRRR!!!!!!

Thanks for letting me vent ;)

deleted_user 06/02/2010

Good that you are seeing another doc and having these tests done. I am not a doctor, but it sounds like issues that I have heard associated with conditions other than MS, and yes, in a way that is good because there is more hope of a fix.

Of course, I am sorry any of it is happening, and I hope that you get some good answers from the tests.

Good Luck, and keep us posted...

smathie2 06/02/2010

I don't know if this will help you or not, but MS is also related to Crohn's disease. I luckily get to have both... but you may have IBD (inflammatory bowel disease) that can affect anywhere in your digestive tract from your moth to your anus.

Also, if your stomach is having issues draining into your intestine, your pyloric sphincter may be malfunctioning. A friend of mine has to have botox injected into her pyloric sphincter to help her empty her stomach. For months before having the injections she was throwing everything up and ended up losing about 50 lbs. She was told she has a digestive disorder

Zzzzowl 06/03/2010

That is truely miserable for you!! What concerns me is that you are waiting to have these tests done, when you should be a priority and fast tracked as a emergency case as you can't keep anything down, no wonder you feel so weak!! Your GI Dr shouldn't be sitting there worrying about you, he should be getting you tested asap, like yesterday!! No matter what is causing this symptom MS or otherwise, you should of had this investigation done by now and started any treatment to get it sorted out!! Good Luck Lotus, hope things improve drastically for you asap.
Hugs, Owlxxxx

EPagain 06/03/2010

I am with Owl on this one.

deleted_user 06/03/2010

Hi ilotusflower, I had problems similar to yours in my early 20s. I was checked for celiac, Crohn's and Colitis and had none of them. Nothing would stay down, I vomited constantly and had pain and the runs. The tests were all negative and the symptoms passed.

My first symptoms of whatever I had started when I was 32 and I've since had one relapse. This time I have more abdominal problems: trouble feeling when I need to go and when I do it's usually loose, some urinary incontinence, intestinal - and quite pronounced upper abdominal - pain.

Get tested no matter what. Like smathie said, it could be co-occurring with MS or something totally separate.

All the best.

deleted_user 06/03/2010

I meant to say the symptoms of whatever I have now. thanks :)

deleted_user 06/03/2010

you can have autonomic dysfunction with MS....it affects the ANS autonomic nervous system which is a branch of the CNS. There is a condition called gastroparesis.

Here is a link from a different forum on autonomic dysfuntion and gastroparesis.
http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Gastroparesis/show/1108422

deleted_user 06/03/2010

the entire link didn't post sorry.

'http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Gastroparesis/show/1108422'

ilotusflower 06/03/2010

Thanks guys!!!

called the Dr again today to tell them that there is no way I can wait 2 more weeks...having test on Monday. I will let u know what they say. This SUCKS!!!!

Smooches!!!

deleted_user 06/06/2010

I am so sorry, that does sound terrible, and I hope you come back with an answer very shortly

ilotusflower 06/07/2010

Hey... It had my test today and it didnt show much. Which is good!!! i got some iv fluids (so dehidrated) and Dr. said it a combo of my IBS and just really strong muscle spasm in my bowels/stomach. With medication it should get better in time...And he swears that it has nothing to do with MS. Gosh I hope he's right!!!! now...lets get better shall we!!! oh...I did have a polyp that they bx...looked normal tho, but labs come back in a week.

Smooches!!!

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