Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
A few months ago my neuro gave me a drug call Oxybutynin 5 mg. I take it at bedtime as it makes me a bit dizzy. It does help. I usually have to take half another middle of the night.
Part of my issues are the bladder, prostate, urethra and sphincters are richly enervated by nerves from our brainstem, the location of my biggest lesion.
I still haven't decided if MS is like the trials of Job or the plagues of Egypt as it something new when you least expect it.
Another issue is weak bladder muscle leading to urinary retention causing you to go more often.
--cuts down on freequency a little.
The urgency went away with my UTI, thank Goddess. My advice is see a urologist and interview until you find one you like. Best of luck
I was taking that pill but half in the morning and half at night. For peace of mind, a diaper to go out.
Weirdest thing,,,, when I started doing yoga my urgency stopped, thank God, now its intermittent.
msactivesource.com has a free yoga dvd.
At 34, I hate to start wearing a diaper, but I guess that might be what needs to happen.
I find I try to avoid drinking anything if I'm out or know i will be out, but this is probably not the best idea.
Also, I have noticed frequency and usually waking up at least once during the night.
In the meantime do see a urologist & explain what you are going through. They can do a range of tests to see what is causing it. This is as well as trying tablets as well.
Unfortunateley none of the tablets worked for me so I tried to self catheterise. This didn't work either as I couldn't do it with shaking hands & clamped hands.
I ended up over a long period & after many tests having a superficial catheter which is permanent. It is the best thing for me as I now don't worry about accidents. Not everyone has to have this but there are lots of options there.
Listen to what everyone has suggested here & try the pads first then if too much flow you might need the pants that hold more.
Catheters are really for when nothing else works & you want to not where pants.
Best thing is to get a really good urologist who you can talk to & is understanding.
Ask lots of questions here & of your Dr's/
I pretty much permanently wear a panty liner just in case of little leaks, and will up it to a maxi pad it I get concerned. I prefer to try learning to work on the exercises they recommend than go on any more meds. I actually want to blame the muscle relaxants I take (lioresal & tizanidine) but according to the prospectus, they don't have that side effect.
I feel no urgency, the flow just starts and I can't stop it. I'll talk to my neurologist when I see him in two months. I've tried Detrol LA, Vesicare, and Toviaz. One will work for a while, then I switch to another.
Good luck & never fear !!!
Your in lots of good company having any of the ms issues !!!
:-)
-Dave