Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
After getting derailed and without a neuro for the last 3 years or so, I finally found a decent one. A great one in fact.
I went today and she spent 1 1/2 hours with me. We came up with a treatment plan and I am now fighting this thing again.
She is taking my concerns about spasticity seriously and we will work with medications to see if I can find relief.
She was personable, listened, and covered all the bases. I have not had a neuro listen to me like that since my old one left the state.
SOOOO happy to be on track again.
I went today and she spent 1 1/2 hours with me. We came up with a treatment plan and I am now fighting this thing again.
She is taking my concerns about spasticity seriously and we will work with medications to see if I can find relief.
She was personable, listened, and covered all the bases. I have not had a neuro listen to me like that since my old one left the state.
SOOOO happy to be on track again.
That's the best news, for spasticity the thing that works for me its PT, at the beginning somewhat difficult and painful , but now I would/ can't go a day without it or is trying to come back again. Love, Alma
Gentle hugs, Linda
I'm happy to hear you found such a good neuro, there seems to be so few of them and to have a good bedside manner what a bonus. Good luck on getting back on track.
Take Care
Dave
Then she asked why stopped taking provigal for fatigue if it was working. I told her the last neuro I tried asked me if it worked. I said yes, then he said well, it doesn't help my other patients so i am not prescribing it. So she typed into her notes. Patient was taken off of Provigal by unfriendly neurologist.
Then she was reading the notes of my long time neuro, the one that left the state and had treated me for 10 years. She is reading and says about my old neuro, "She seems like such a nice lady, was she a nice lady? You can tell by how she writes. She seems no sweet."
This doctor is like no other I have come across. She treats me like an equal, not some dumb idiot who is beneath her.
I read about it and was discouraged to see it was for walking and not my other issues, but then someone shared a link that said otherwise and I am now encouraged.
She also put me on Topamax, which I HATE. But she said in the past I tapered up to fast according to my records. So, she will work me up slowly..
I realize this may not be the answer, but it is a start and she is trying to help me get my life back.