Hello Kath ~

I haven't started the injections myself although I've heard that a Dr. Mark Stengler has written about a study. He had an MS patient who noticed a remarkable difference after one month of twice weekly injections and daily sublingual.

So, I started the B12 patch and I'm not sure if it's helping. How is the shot working out for you? Is it a pain to take it? How often are you doing it?

I think it's the best form of B12 from everything I've heard. I am looking forward to hearing how you do with it!

Lorrie, I just started this week with the injections and they are painless but a pain in the butt to have to do them lol.

I have to do once a day for a week, then once a week for a month then once a month for a year.

My fatigue is so bad right now that I"m anxious to feel better and I know I"m just dreaming that I"ll notice any change this soon but once in awhile aren't we intitled to a little wishful thinking lol.

I'll keep you posted on how soon I start noticing a difference, and how things are going with them.

Thanks so much for caring enough to answer my question.
Kath

Just wondering, Kathi, are your injections intramuscular? If you could confirm that you do mean the "intramuscular" injections being painless, perhaps more of us wouldn't be so hesitant to give this a try.

From what I've heard, the injections do sound promising so I'd be sure to write down all the detail of how you're feeling and then re-visit those notes in another month.

Well, I do not know if I have good news from my end. I have been on the B-12 shots for about a month. I have not had any boost in energy, and my leg hurts the whole day when I do it! That could just be me, I have alot of trouble with my legs to start with, so sticking a needle in my muscle might just make it worse. It might also have to do with the doc prescribing what seems to me the biggest needle you could think of! (not really but it seems like it)

I have talked to others that have taken it and they said that they did not get a boost in energy either, but we also agreed that it might be becuase we are already really low, so that might play a part.

I do wish you the best and I hope it gives you the energy you need!

Best of luck! Lisa

Lorrie I do the intramuscular and they are painless so far. once the needle is in there is no burning or pain or soreness in my muscles. i have fibro too so i have pain all the time all over my body and i don't even notice any new pain at all from these injections.

I will write down daily in my journal how i am doing with them and we will see in a month how it goes.

Thanks Sweetie
Kath

Lisa my needles are really long too, and i'm going to see if given in the leg I could use a smaller size needle.

I guess when your B-12 is low it's pretty hard to get it back to normal at least the high normal they want you at. The neuro did say I would feel so much better after taking the injections, wellllllll we will see.

I hope you feel better soon and good luck with your injections hon.

Kath

I take B 50 B-Complex and it does work wonders, I take 2 a day

I have had my husband give me the shots, approximately 1 a month, for several months now. I had him give me just 1/2 a shot this morning and shared with him that it seems like right after a shot I feel drained and just want to sleep for about the next 24 hours. My thought is that because I seem to have a very low tollerance to any medications I am having the opposite effect that I should have initially. I just went online to see if too much B12 can cause a reverse effect but did not find anything to support this. Has anyone else experienced this? I had him cut the dose in half to see if it would help but right now I feel very tired and my body feels weak. I am not on any treatment for my MS and have been doing pretty well for the last 2 1/2 years since I was diagnosed. I see my MS as a blessing (eye opener) with how I take care of myself. This support group was a saving grace to me as I went through all the attacks and tests before finding out what was wrong with me. My heart goes out to all that suffer.

BBopsmom, I'm having that same reaction to the shots. I seem better in the morning before I take it then after for a few hours I'm so weak and so tired I just want to sleep.

I"ll check with my Neuro who ordered this and if she can't answer me I"ll call the pharmacy. Seems funny I had fatigue real bad before the shots but not all this weakness.

Feel better soon Dear
Kath

I did find on Medicine.Net that weakness is a serious side effect of the injections and should be reported to your doctor.

So I guess I"ll call in the morning and see what she says.

Thanks a bunch Kath. I am not seeing any Dr's and have not been to a neuro in over 2 years. I guess I will stop having my honey give me the shots. He has been doing them for a couple years and feels they really help with his energy level. I would love to hear what you find out.

After taking the B-12 injections for over a month now, I can honestly say I am feeling stronger. I have less fatigue now than I have had in over a year.

The initial weakness I experienced during the first week is completely gone now and didn't last but just a few days.

I would strongly recommend using the intramuscular injections to anyone. The needles are very long but very thin.....painless.

I hope this helps.
Kath

Hi everyone. When I was first diagnosed the neuro prescribed them. no training on injections either! Of course the diagnosis was chronic fatigue (and I had no fatigue) and he was a bozo (long amazing story not worth repeating here). But I tried for several months and zippo nothing happened. I have a close friend who is an internist and he said...waste of time you pee it out in your urine..unless you are B-12 deficient.

NOW years later I had a conversation with my PT. She takes Trader Joes sublinguanal tabs. So I have started again. Take both B-12 tabs and B complex to do what I can to protect the nervous system.

Have you heard about the drug Amantadine? It was desinged to help avoid the flu but in some people it has helped with energy.

I am not going down the road of provigil/nuvigal. That didn't even work for me. But there are also supplements--creatine I think is one that works at the cellular level to help with energy. A neurology resident told me this. Looking this up I saw protandim too- Nicki posted about this some time ago and there is real science behind it.

There definately are non-drug strategies I just don't know enough about them. I am starting a new anti inflammatory/Dr. Wahls diet to see if that helps.

Hope this is not too much info!

Good Luck Kathi

Melanie

Melanie I was very low in B-12 and that is why I was given the script for injections. I do notice a difference.

You also mention creatine. I had mine checked last night before my MRI's and it was also very low. They hestitated to give me the constrast due to this. I was told to drink plenty of fluids to help flush the contrast out of my body when I got home. Don't know if this is the same that you are referring to or not or if it has anything to do with low B-12 or not. Just thought I"d put that out there.

Be well

Kath