Sounds like you are blazing a trail here. We are going to learn from you. Let us know how it works.

As a matter of fact, I'm reading a book where the author is a naturpath doctor. She claims to have cured her MS. She explored Bee Venom Therapy (BVT) as one of the final things that helped her leg numbness. She also took Sphingolin Myelin Basic Protein.

Just some things I've been reading in this book and thinking about trying myself. (She also administered her own B12 shots although I have read that the closest thing to that is the B12 sublingual which I am taking.)

The book I'm reading is "Reversing Multiple Sclerosis" by Celeste Pepe and Lisa Hammond. I picked it up years ago and put it back down since I wasn't real sure of naturopathy at the time and some comments I found about it. I am reading the book now with a fresh and open mind.

Best of luck to you with finding things that work. Please share your findings with us. This is exciting. Other doctors mentioned in this gook include Dr. Van Benshoten and a diet for autoimmune, hinese herbs aiding in digestion, Beef protein extracts, Hans Nieper, formerly of Germany, with an MS vitamin and mineral therapy. There's lots of info out there - I love it when we can get steared toward it!

Make sure you ask your doc about getting testing for B vitamins, Vitamin D3, fatty acids including Omega 3,6, and non-essential fatty acids. Then try to work with your doc to get your numbers up to at least 40% of normal.

D3 with fat, B vitamins, Probiotics, R-Alpha Lipotic Acid (R-ALA),rosemary, garlic, onions, turmeric, low gluten/sugar diet with lots of fiber (help good gut bacteria that protect the gut mucosa and down regulate inflammation) all reduce inflammation.

Best wishes to you,
EP

LOOK UP B6 AND JUST OTHER VITAMINS OK IT DOESNT HURT TO TAKE AND EAT HEALTHY TOO

When I take larger amounts of powder Turmeric capsules, my lungs feel funny, so I hold the amounts to the suggested dosage. I don't have that problem with solid caplets, but also believe the powder works better.

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you betcha.... tumeric, omegas, antioxidents, vitamin c MSM ALA.. ALL DAY

if I drank a gallon of that god-awful green tea a day my legs would loosen up maybe 5 to 10 per-cent...but I've got to have coffee or I get a headache, and the green tea does'nt always loosen up the legs as mentioned...that's as much as I've tried lately...I'm stuck in my room...my Mom looks after me...hahaha...and I'm only 50...hahaha

Also, most everyone on the planet is purported to have a magnesium deficiency. Magnesium helps the muscles be able to relax. It works with the calcium in our system which helps them to contract. There's a synergy that is supposed to go on and it also keeps people from getting kidney stones, etc. I take 1200 mg per day of magnesium along with the Turmeric, and other supplements. (Ubiquinol, D3, Daily Vitamin, B complex, sublingual B12, and 2000 mg of C) Unless I forget anything, that's about it.

reply #7

Your legs might loosen up which would be good to get you the bathroom...that much green tea and that wouold be where I spent most of my time!

I have found that if I drink coffee first thing, and then green tea throughout the day, and then a nother coffee at abotu three or so, I can make it.

Oh, I forgot to reply to the thread!

I have never taken steroids. They would not have helped with the damage i suffered before dx. which is much of what I deal with on a daily basis, and the things that have happened since or at, I just didn't want them.

I was very lucky to have happened upon aloit of posts by EPagain about inflammation, and have followed a great deal fo that advice, along with finding other sources, and have put together my own little routine. I take about what lorrie does, that isn't the full list, but in erms of inflammation fighters, very close.

The thing I would say is that this is a great thing to do each day, not just in a flare. Keeping it down can help to prevent the flares, adn that is the best way to treat a flare.

Good luck, and remember, it really can't hurt and can only help.
Oh, one thing, I switched from "fish oil" to liquid flaxseed oil, Ithink it works better, and the "vegan" fish oil, which was really from kelp, was way expensive. My nice health food store person suggested it and it is much better.

I got distracted from the question. This is an excellent one. I'm looking up some things right now. In addition to a permanent type of anti--inflammation diet, there seems to be more info out there. I've got this so far:

Alpha lipoic acid has been helpful in a mouse study and recently showed biochemical marker improvement in a human trial. A dose of 10 to 25 mg of R lipoic acid may be appropriate. Most R lipoic capsules come in 50 mg, so, opening a capsule and taking a portion is one option.
Carnitine has been found helpful in reducing fatigue in patients with multiple sclerosis.
Curcumin blocks the progression of multiple sclerosis in a laboratory study.
Fish Oil capsules may be helpful along with consuming more cold water fish with omega 3 fatty acids. Would salmon eggs or fish eggs be helpful?
Flavonoids may be helpful
Ginkgo biloba have shown intriguing preliminary evidence of efficacy.
Consider Vitamin D supplementation. There appears to be an association between vitamin D levels and MS relapse rate. It may be possible that vitamin D supplementation could have an impact on the course of this disease. Mowry EM, Krupp LB, Milazzo M, et al. Vitamin D status is associated with relapse rate in pediatric-onset MS. Annals Neurology, 2010.
Nicotinamide has been studied in rodents.
Yoga is helpful

Here's this site: http://www.raysahelian.com/multiplesclerosis.html

Looks like Turmeric is the best natural anti-inflammatory herb:
http://www.herbalremediesworld.com/anti-inflammatory-herbs.html

I found some info on Alleve that sounds promising - I was going to mention Naproxen working better than Ibuprofen and then I found this on Alleve working even better.

I like the Naproxen myself and I usually buy the Walmart label of it - lasts for 8 hours so I don't have to take it so often.

I'm going ot watch this post to see what ideas everyone has.

I am actually taking Alpha lipoic acid and Carnitine, trying to get the doses right, I am told that one compliments the other and so I need to find the right place or it won't really be effective. Interestingly, I have yet to find two sites that say exactly the same thing about doses...I know there is at least one other poster taking this combo. I have to say that my intial response is that I am beginning to feel the difference, I think it is a good thing. but I really haven't decided for sure, and really woundn't yet want to recommend a dosage, but I think it is really worth looking at.

I was told to take either curcumin or turmeric, don't need both as it is the curcumin base that makes turmeric effective, but again, just some advice I got, not an absolute.

lorrie, thanks so much for your posts. I forget to tell you sometimes, but they are so helpful as I am looking at ways to tweek my routine, and hopefully, tweek my MS.

I'll have to look up ALA and Carnitine! Thank you too, Nikki!

The best thing that I have done for myself lately to cut down inflammation is cutting out all sugar, processed foods and most all wheat/grain products. Within two weeks of cleaning out my system of these foods, my feet stopped hurting. I was in tear they hurt so badly and could not go barefooted at all. Now I am pain 99% or the time in my feet and less pain elsewhere too. I also have been tested and have very low vit. D, so I take about 5000 units of D3 daily, turmeric, Alpha Lipoic Acid, multivitamin. I need to add the omega 3 and 6 and the carnitine sounds interesting. Staying on this new way of eating has made such a difference in my life that I cannot imagine ever eating differently, except on special occasions.