I have had bad reactions to all the injections and cannot use them.
I sure wish there was something anything that could lessen the flareups.

weaver--

There is Tysabri which is a monthly infusion and the first of the oral drugs should be out later this year with many more following after that. So hang in there and don't stop looking because of bad effects from the current drugs that are available.

Yes, LDN should stop progression. Without needles or side efects.

Plan to be on it forever as it is working so well for me.

i was on avonex, but the side effects were horrible,so now i i am not on any prescribed meds,i am currently self medicating with one of the more contreversal meds,and seem to be doing ok

I was diagnosed about the end of 2001 and here(U.K.) I have not been given any regular medication. After a couple of relapses afew years ago, within 2 years I was assessed under current ruling for beta interferon but it wasn't then prescribed. Had last two relapses in 2007 but relatively minor compared to the earlier few and I recovered my normal movement just before I was due to get intravenous steroids. The only person I know with MS is in California and she seems to have been given an awful lot of medication but has had more severe relapses and some bad reactions to drugs. Obviously it could be that her disease is intrinsically more active than mine. For now I hold with my neurologists' opinion - and they include the top U.K. Prof on MS in London to whom my own neorologist referred me for a second opinion -that I don't need medication at this time. Incidentally I take oil of evening primrose, use sunflower oil quite often in cooking and take folic acid - if it was good for my baby's nervous system I thought it should be good for me.
I'm only one case but thought your qestion was an interesting one and hope this is useful at least as a comparison.
Take care of yourself.

Dxed close to 10 yrs ago. No meds and not much meds for pain either...I am slowly progressing but at times I feel that there is a light at the end of the tunnel...In a few more years all things will be definite for better or worse..take care...

I'm in a mood that I want to take a break from them for a while. When I started them I know I needed them.Now they just make me feel yechy....its time to take a break from them and relearn my need of them. Now is the time for my insurance to deny coverage!

Now in my third decade of my quest to control MS. Never done the crab drugs & always investigatined alternatives, found in books & the internet.

Think I am winning because I've been in remision for the last decade & have some symptom improvements. No pain, good energy & have found a way to sleep very well.

Plan involves very carefully controlled diet, exercise & several supplements. The only drug I take for MS is Ldn (very inexpensive.). As a fall project I've written everything out in a website. For anyone interested, google.ca, then enter MSalternativefix.com.

Have a nice day

Darcie: I told to check your site out, but it would not open for me. I tried on my desktop and on my iphone. k

I was diagnosed with tumefactive ms. it is really rare and the chance of recurrance is very low. I only take 2000mg of Vitamin D.

Another vote for LDN here. Very inexpensive, no needles, few if any side effects (first week or so only).

From everything I have read & my experience, it wil keep MS from progressing & if one is lucky, could some symptom improvements.

Info online @ ldninfo.org

I don't advocate doing nothing or likely one will progress. I took Copaxone for 2 years without positive effect, only side effects (some of them scary). I decided to investigate my own health problems with help from various medical professionals. I really got focused on a healthy lifestyle with reducing stress, increasing exercise as able (and I am more and more able), changing diet (no gluten or dairy due to identified allergy). The best thing I did was get my neck fixed (realigned). My symptoms slowly came on after a bad fall, although I didn't connect this at first. I was hoping that this would slow-down or stop my progression, but I got a bonus. I have been improving! Be patient and don't give up searching for what works for you....you are worth it!

I went for 16 years from first symptom (optic nerve) to complete recovery, no dx, no meds and then I had a relapse in 98. Went for year with no meds, healthy diet, etc. but w/ stressful job. anyway, in that year w/out med, I went out on disability from fatigue and few other problems. 1st went on Avonex, then Rebif and have had little progression in last 11+ yrs. Went off of Rebif briefly to try Tysabri and had a real problem, so went back on Rebif and am doing fine. Cannot complain. So Rebif is definitely working for me. I tried twice not being on the drugs when MS set in and it didn't work for me. So I am sticking with Rebif or a beta serone type drug.

No meds at all for me. Starting having neurological issues at 11/12 (puberty) off and on until a major exacerbation at 21 (after a month on birth control pills...hmmm) then bouts of VERTIGO, tingling, numbness, disorientation until another major exacerbation when I was 46 and entering menopause. I couldn't walk half a block. I think mine is related to hormones. Now I am 54 and was placed on Crestor for high cholestrol in December which has stirred the MS symptom pot for me.

i do not take my meds right and have not had a shot in about 4 mo. or longer. I have not had any problems other than heat ! I am due to go to the dr on jul 6th and i am kinda wanting to get off the meds and just keep a close look out. I have not had any other signs of MS other than Optical Neuritis( had one attack of it ) and some weakness when i get out of the heat or out of the shower but it goes away in 10 to 15 mins.. my meds sometimes makes me feel worse than when i dont take it at all....