Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
From what I understand this is what they call the feeling of when pain is left due to a stimulus.
I think this is what I deal with daily. I keep a journal, and I noted that this has been going on now for over a year. It seems to be worsening now though. It hurts when I put on my socks, my jeans, or when I lean up against counters or even when I am sitting near someone and they bump my right side. The pain is always due to the right side getting touched. I feel bad telling my husband, or children to "not touch my right side" at all, as even the simplest hug, or touch to the skin hurts me.
I can't even lean my own elbow down onto my own thigh without the pain being intense. I noted this evening, as I was leaning against a door jam, it hurt so much to lean on my right shoulder...just gentle leaning! ugh!
Am I the only one who experiences this? Is this what others out here experience? I feel like I am so alone in this stuff sometimes.
I think this is what I deal with daily. I keep a journal, and I noted that this has been going on now for over a year. It seems to be worsening now though. It hurts when I put on my socks, my jeans, or when I lean up against counters or even when I am sitting near someone and they bump my right side. The pain is always due to the right side getting touched. I feel bad telling my husband, or children to "not touch my right side" at all, as even the simplest hug, or touch to the skin hurts me.
I can't even lean my own elbow down onto my own thigh without the pain being intense. I noted this evening, as I was leaning against a door jam, it hurt so much to lean on my right shoulder...just gentle leaning! ugh!
Am I the only one who experiences this? Is this what others out here experience? I feel like I am so alone in this stuff sometimes.
Yes, I suffer from alot of pain from the waist down, and when someone touches my legs, or I bump up against something with my thighs, it hurts like the devil. My family knows not to touch my legs at all. However, the touch of sheets does not hurt my legs like some of the definitions of allodynia suggests, so I don't know if one would say that I suffer from this. Also, I understand this is common in fibro, and I am not dxed with fibro.
We have a great sub-group on pain here at DS. Stop by sometimes and maybe you might find something else to be of interest on the subject.
http://www.dailystrength.org/groups/ms-people-dealing-with-ms-pain
lchoppel, I looked at the page/group thing you mentioned. I tried to set it as a "group" that I could go back into often, but, I am not sure if I got it set up as a group I am in or not. I am not too savy when it comes to these things. But, when I looked back at my list on the side of this page, I don't see it now. ? What should I do to set it as a "go to" for me?
Am I even making any sense in what I am saying here?
Sorry if I am not.