Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.

meg40185
I was diagnosed with MS a little over a year ago and have had a few relapses during the course of my disease. I have experienced fatigue before, but suddenly it seems to be so much worse! I'm falling asleep at my desk at work, while driving, while reading...everything. I know fatigue is an extremely common MS symptom, but I need some advice as to how to calm it down a little bit. I have a newborn and a 7 year old to care for, as well as a husband on dialysis. I have a full-time job as well. I can't be falling asleep all of the time, especially while driving! I don't have health insurance so I can't really go the medication route. Does anyone have any advice as to how I can cope with this? Could it be the beginning of a relapse? Thank you!
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Yes, with a newborn its possible, however you need to pace yourself, doing a little less today, means doing longer later.
I got pedals, sometimes I just slide from my bed to chair next to it and start pedaling, ten minutes later im feeling, lets go shopping good. Exercise is extremely important, do yoga with the baby, aerobics with the older child, I do chair aerobics, fun and I don't get tired.
Alma
I kind of disagree with the exercise thing. It is OK if you can but sometimes the fatigue is so bad I can't get up to go to the bathroom much less exercise. If you can, do what you can but if not don't feel guilty by saying I can't.
My biggest problem with fatigue is I can maybe push through it for a special event but they pay for it the next day. Those who don't have this problem just don't know how dehabilitating this can be.
Fatigue would be expected after a newborn too & often relapses. You need to be in constant contact with your neurologist at this time.
One thing you should do is take a break, even a 5-10 minute break every hour to rejuvenate. That often helps with the fatigue, just short breaks to make you safer esp with driving.
ome gentle stretches also help, just move your legs out or in bicycly formation & stretch your arms above your head & straight out in front of you.
Dont over do it but esp take the breaks & gentle stretches.
Take care of yourself, your family need you & you need to rest & recuperate too.
I was in a wheelchair, couldn't walk and fatigue its still a big issue for me. Now im with a walker and cane because I went to pt and got a home program. When I started pedaling for six minutes every other day , I could not lift my leg to place on pedals, stay awake during session,, today I pedal two to three hours daily on my own , nobody makes me, except my desire to maintain muscle mass and remain mobile. Movies are made from people that face challenges and beat all odds. Not those who just feel victim of their circumstances. My dr said I couldn't, I said send me to pt. He did and I squeezed every drop of knowledge from those women,,, my gain.
My daughter also has ms and fatigue use to keep her in bed, I used to push her to stretch in the mornings, sometimes I had to text her because I was still in bed stretching myself. For a long time, I couldn't get out of bed by myself, she had to drop my legs and rotate me. I didn't like that feeling, so I do what the healthier patients here recommended. I exercise and modified my eating habits.
http://www.www.FreebiesForMSers.org
I'm also with you in the no-health-insurance-boat. And bless you for trying to work with MS, take care of a newborn and a 7-yr. old and your husband too...That would be enough to wear out ANYONE --much less someone with MS. ((HUGS))
The one good thing (if there is one) about not having insurance, is that you can always show up at the ER. They HAVE to see you. They can turn you away as soon as you are "fixed" with much less attention than someone who HAS insurance, but yet, they HAVE to see you. So, for me anyway, that has been a comfort.
Try to take care of yourself. Your fatigue is your body telling you to stop and slow down and rest...and I know, we can't always do that....
HUGS
I wish you well and I hope you will try both the exercise and the diet. You don't need to go overboard on the exercise, just starting and working froward will help.
Hope you begin to feel better real soon.
~Lorrie