Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
On Thursday I went to the orthopedic specialist & had my foot checked. Had the stitch removed & the nurse spoke to the Dr - I didnt even see him which annoyed me. Anyway the news was not good. I am still in the boot & walking on the back of my foot 50% weight only for another month. I go back on the 20th December to see him again.
I am still in a lot of pain from the foot & apparently the front part of the foot will take a long time to heal & he wants to make sure that it heals well so that he he doesnt have to go in again which I would dread.
That was not a good visit & I was not happy with the outcome as I thought that I might be able to walk flat footed.
Went to Neurologist yesterday & he did thorough checks of all reactions strengths, numbness & eyesight & all had deteriorated.
I need to go to the optometrist for new glasses/eye check.
For everything else & there was a list of symptoms getting worse it is progression of ms. I now have it in both sides too so not happy as numb a lot. He did say to use my electric wheelchair more. I had gone in my walker as the council who organised the taxi had booked a normal taxi. I wont let that happen again.
My mind is not working well with lots of memory problems & word finding. At least I am not having flare ups so the Gilenya is working.
I am so tired & fed up & feel no one can help & crap just keeps happening.
I am still in a lot of pain from the foot & apparently the front part of the foot will take a long time to heal & he wants to make sure that it heals well so that he he doesnt have to go in again which I would dread.
That was not a good visit & I was not happy with the outcome as I thought that I might be able to walk flat footed.
Went to Neurologist yesterday & he did thorough checks of all reactions strengths, numbness & eyesight & all had deteriorated.
I need to go to the optometrist for new glasses/eye check.
For everything else & there was a list of symptoms getting worse it is progression of ms. I now have it in both sides too so not happy as numb a lot. He did say to use my electric wheelchair more. I had gone in my walker as the council who organised the taxi had booked a normal taxi. I wont let that happen again.
My mind is not working well with lots of memory problems & word finding. At least I am not having flare ups so the Gilenya is working.
I am so tired & fed up & feel no one can help & crap just keeps happening.
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Usually I get a daily influx of emails on health topics. An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism. Another new factoid for me. The bottom line for me was to appreciate that even our fat cells play a...
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I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...
Many {{{{{HUGS}}}}} to you dear. Some days are worse than others, and I'm hoping that when you wrote this post, it was just a bad bad day for you. Keep up your strength and continue to fight this disease over your body as much as possible. Don't give up, we are here for you.
Gentle Healing hugs sorry for your pain.
O have been through so much already & to be told its going on is not nice at all. I am very p'd off to put it mildly.
Sorry to vent again but after all this going on 12 months before surgery then 9 weeks in hospital & been going on since september 6 NOT happy at all.
This is beyond my limit of pain & that takes a lot for me.
I'm sorry you're going through all this. Sometimes doctors seem to have the bedside manner of a dragon or something. They seem to paint the worst scenario and they're not right all the time either. Seems like healing can take along time, especially with MS but at least your foot will heal nicely. Sorry it's taking so long.
Glad you vent - it helps to get this stuff off of our shoulders.
Hugs,
~Lorrie
I'm sure you have tried everything and I know that you have access to world class medical help, but I wondered if yo have been to a pain clinic, and if so did it help?
Thinking of you.
Jill
Hugs, Owlxx
Can you get a stronger pain killer?
If so, see if you can get some MSCONTIN (aka morphine sulfate).
It works a lot better than taking a bunch of other types of pain pills.
If I take one or two of these a day, it helps a tremendous amount and I don't need nearly as much of the other pain medications.
I'm really sorry to read that you recovery is going slow. Patience, patience, patience. I've been saying that word a lot lately as I am impatient with this illness and I never know what to expect myself.
I'm glad that the new medication seems to be cutting back on the flare-ups.
Maybe you've crossed over the road to primary progressive (no more attacks -- just getting worse slowly is how it is for me).
You are a strong lady and I have a lot of respect for you and I tend to agree with your doctor that told you to use the electric wheelchair. That is why you have it, to use it and believe me, you would not have gotten it if you did not really need it!
Take care (((Sue))).
I didn't know the year, where I was or anything. I have to be real careful with the medications now.
I go to a chronic pain clinic which overseas all meds & what is wrong & they are really good.
I am waiting on getting in to a different pain clinic closer to home that does a range of different things. I have been on their wait list a long time.
Thanks to those of you who say I am a strong lady or an inspiration etc. I really appreciate that.
I seem to just keep getting the punches & it hurts tp know that t is not stopping.
I think I am probably progressiing but the neurologist doesn't want to change from remit relapse as them couldn't use gilenya.
Sorry for typos, shakes big time & blur vision esp in right eye.
Sorry for another vent to that was meant to be a thanks.
Thanks again everyone for kind & supporting words.
Sending love and thoughts your way.
The challenges just keep rolling in. Today I had the district nurse come to change my catheter which I thought was infected & I was right. It was very painful to change as it was infected. Took 2 catheters to get it in & was very painful.
Got it done, now have to drink heaps tonight to make sure draining well.
Hope this one works better & doesn't affect me.
Also still constipated even though got diarrhoea every day, its coming around it. Back on laxatives to get it working better too.
Can't believe all this happens continually.
I always know I can come here for understanding.
We don't have thanksgiving here in Australia so we had a quiet weekend. Went to the local shops for out weekly shopping on Sunday & that was about it.