I rang the local GP clinic at about 11am Wednesday as wasn't feeling well at all. I had gone to stand up & my left arm just fell by my side & my left leg would not move & speech was crappy. They said to go there & be triaged. Got a taxi there & was seen by the nurse fairly soon. She took bp 184/125 & then my Dr came in. They didn't like any of symptoms so called an ambulance.
When the ambulance originally came they said they were taking me to Dandenong hospital & that was ok. Then they wanted me to smile & then decided that was really off & face droopy so needed to go to Monash, I let drop the "F" word & everyone cracked up laughing, the 2 ambulance people, the nurse & Dr all thought it was hilarious. They didn't expect me to drop the "bomb" word. The 2 ambulance people said that a lot of people think that about Monash hospital but dont say it & Nurse & Dr said that is so unlike me to drop that word so clear. (lot of history on why I hate that hospital)
They agreed on Dandenong till I got neck pain, back pain & couldn't talk then changed to Monash. I didn't realise they had lights on till got there & I asked how come so quick & they said lights always speed it up. We got straight in at Monash into a cubicle. They had put morphine in through vein & can't remember much more.
As usual emergency stuffed me around, saw dr quickly then neurologist then had ct & xray but not allowed to eat/drink till after saw neurologist other than pain killers they gave me often.
Had bad night with left side not working, bp & temp taken often, lights on,
opposite main nurse desk & curtain open as they wouldn't close it, etc.
Thursday I was tfr to day theatre while waiting for bed. Neuro wanted me to go on steroids & I still refused even though he said I had optic neuritis long with all weak on left side. Physio & ot came & assessed me & both said that I was ok to go home if neurologist ok'd it so long as I took it easy for few days. Then registrar/neuro said wanted me to see consultant but when I said not going to change my mind, not going on steroids, he decided that I could go home so long as take it easy. Refusal of treatment
David has Friday off so will help me for next 2 or 3 days.
Still struggling & left hand doesnt reach mouth (fun eating) & left leg doesnt move far at all. Doesn't even meet back of right foot at moment.
Today/friday slept in which was nice & needed & then been feeling crap all day.
Still not walking good so in chair in lounge mainly & right eye is closed &
blurred & burning so not happy.
This has taken me ages to write & several rests imbetween so if disjointed or repeated - thats me & why. tv munchkin today mainly.
Anyway thats my excitement for last couple of days. Now still feeling crap to put it mildly & not happy that this has happened. I have been tryong as we all do to avoid it too.
Spoke to social worker at ms society & she offered more help but I don't know what I need so will wait & see after a few days. She is really good like that.
Sue