I am going to vent - sorry in advance but as they say sometimes it just gets too much.
I have been really struggling for over a month with a variety of ms issues. The worst of which was the eye trouble. My right eye basically went blind & left eye was following fast. It also closed & did the rapid blinking.
Did a rapid run around all the specialists with neurologist on friday then eye specialist at hospital the following monday & 4 hours worth of tests & different Drs looking at it with drops etc. Was told it was nerve damage & could easily go totally blind so freaked out. Then told had to wait for a appt at eye & ear hospital & that could take anything from weeks on, burst out crying as couldn't take thought of waiting. By time was leaving the registrar (head Dr) came out with the phone & the hospital had got me in that Wednesday for the specialised testing that they are the only ones in state to have the machine.
Went there on the Wednesday & by this stage all ms symptoms had kicked in so could not get out of w/chair much at all either. Had the testing done, blacked out during the kaleidoscope one of all these different things spinning & I was supposed to say yes when saw the right letter in the middle. They think that was seizures or similar. That appt also took hours as had 2 different lots of tests & then wait to see the specialist after it for results. Their decision was that I needed steroids & wanted me to see neurologist again to organise it.

Rang neurologist rooms next day & got an appt on Friday to see him. He took look at few of my reactions & mainly eyes, which were real bad by then & said - think you need treatment, when can we start. I thought he meant have drip & go home but when I said "well Im here now" & he replied I will get the bed manager & we will "create a bed for you" I was shocked as it is hard to get beds in our public hospitals.
Then I had to throw in another issue. I said I need to be out of hospital early next week as mother in law had passed away on the Wednesday night. We didn't know when the funeral was as the coroners had taken the body but thought early the following week. He promised I would be out in time.

Got room within a few hours & on drip that night. Saw neurology team that night & they were surprised I had managed till then as I literally could not lift myself to get on/off bed or to loo. I couldn't see out of right eye & left eye was constantly blinking & teary.
The next day (Saturday) I lost the plot totally. I could barely get out of bed & let them just come & empty catheter bag at the bed rather than get up with assistance, didn't have a walker so wasn't allowed out of bed by myself. Husband came in & brought me a few things & he was really struggling with me being in hospital, not being able to see properly, walk, speech was bad etc etc. He needed me at home too as he was was struggling with loss of his Mum, she was 92 but we were very close to her. She was more a Mum to me than mine is.
Later in day my leg decided to spasm madly but then my good leg joined in so both were spasming, tried to lay down, nurse tried to put piloow under them to help & that made them worse, then back went into severe spasm & I couldnt move at all. They ended up calling the Dr's giving me valium, tramadol & ended up with morphine through the drip. The legs went for over 1 hour & back didnt release for long time after that so couldnt move or move head etc.
I was in agony & just burst into tears & couldnt stop. They kept aksing me what was wrong & I felt like saying -where do I start? just wanted hubby there but we live about 1-1.5hr drive from hospital I was in so couldn't ask him to drive back & nothing he could do.
When tea came I couldnt move enough to take covers off food or open containers so had to get help with everything. Made me feel really useless to say the least. Had a really nice nurse looking after me which was good.
Had tv on just to take away from the boredom too.
Sunday was boring to say least, saw Dr's nurses & had tv on for background. Half the time couldnt focus on it but fell asleep with it on better. Had phone call from Sister in law with details of funeral for that Wednesday so I needed to be home by Tuesday at latest. I was reading a poem at the service that I had written about Mum & she knew that.
Saw neuro's on Monday & they were talking rehabilitation after the hospital, not home. I freaked out & said that I refused as had to be home to be with husband before & after funeral.
Had assessment by physio & ot's & they agreed I could go home as have modified house & local physio group etc. Was given a walker so that I could get out of bed & move around a bit. (I had been admitted after dr appt that I went to from work on electric w/chair).
Then had to wait for all the paperwork to be signed off by neuro's next morning.