Oh girly I wish it wasn't such a battle too< I sit there & think "we should walk here" then we do & it sucks:( but at least i got excersice!!

I understand and feel the same way sometimes. I miss going to the beach, walking in the waves. There are so many things we miss out on.

It's good you came here to vent your frustration. We all care and very much understand!

Amyxo

I usually end up crying from the frustration. I'm not the woman my husband married, but thankfully he truly believes in his wedding vowels and provides the best care giving support to me that he can. I cry when he is frustrated because I don't know how to help him. I can't make the symptoms of MS go away to help alleviate his frustration. I'm sorry I'm not much more help. It is a way of life that we have to accept with MS. My problem is I haven't accepted that I have MS yet. Maybe that is the key?

I know your frustration and I know I'm not much help because I am still coming to turns with this whole MS thng. I can say that I still try to get out in the heat and I end up regretting it. I guess we have to find more indoor activities.

It SUCKS!

Hi
Sorry you are feeling like that. Everybody around me have accepted this new limited me. I'm grateful for that. I used to feel frustrated when they didn't let me try. So I told them, let me try first, then help me if I can't.
When we do something , everything they do is around my needs, they know where every bathroom is, are there ramps, elevator, space for walker or wc.

Since my family sees, I'm limited physically not emotionally, they have accepted everything as normal. I'm invited everywhere, they pack the car with all equipment, and I carry a cooling vest, extra packs, water, etc.

Alma

Is he the same man you married? I agree you should be grateful that he is sticking to the marriage vows. Amazing how rare that is these days. But you didn't ask for MS to happen, and it's certainly not your fault.

Communicate your thoughts and feelings with him and strongly encourage him to do the same. You may be hurt by some words that come out but you may also be amazed with the man you married. Be grateful he is by your side!!! I wasn't diagnosed until 6 years after my divorce and he treats me like a lepper now! Communication is the best thing for any marriage!! With or without ms

This disease is totally frustrating for you and your whole family.It is great you have support from your spouse.All I can say is that we all have to hang in there.Hope things go well for you head up and stay strong.

It is frustrating. My mind thinks "I can" and then " I can't "
For me it's not only frustrating,it is how I feel everything is out of control. Not being able to take care of my home,my yard and flower gardens as I was able to do before.Going places, and doing things with family and friends. Planning activities with my Grandkids.( though they never complain)Everything used to be organized..,had order. Now i feel there is no order in my life.
However," It is what it is". The acceptance of that,is tough,and I do hate that saying.But it is true.
Phisically and mentally, it is a daily challenge.

Thank you for all of your support. I just have not come to grips with my limitations yet. My husband is trying to be supportive. He sometimes just "doesnt get it".

My friends and family do not get it because I am different now-they have hard time accepting me being ill.They do not care to educate themselves about this disease.I am so dependent now on friends and my sis in law who lives in SC and I am here in WV.I have alwys prided myself on my patience with my Autistic son.Now I take a daily zannax so I don't yell at him for no reason.This support group my sis in law found for me is my lifeline and she also bought me laptop since I recently had to resign from my Social Work job.Neuro will not let me drive.Off to Cleveland Clinic T and nervous as hell