call your doc. ask him for drugs and sleep aid so you can at least sleep through the shit.
You may need to try some different different combo's of drugs to find what works for you to give you relief but try and also vent when ever you need to as that is what a support group is for.
If we can't vent among ourselves who the hell can we vent to.

yeah, I just took two ambiens, i need some major rest, i guess i been doing to much. thanks for listening :)

I hear you, I have been having the same problem for a few weeks now and I know for right now there isn't much I can do about it. I feel your pain. Hang in there, and you vent and cry anytime you want to.

Sherry

It started out slow, then the pain progressed and didn't go away. I was referred to reach a pain management specialist, and 4 months later I'm almost tolerating the pain. The pain in my legs and feet prevented me from walking. While I take meds stronger than morphine, my head is together with what I take. That was a concern of mine in dealing with pain medications. There are some terrific drugs on the market now. Don't let MS take away your walking or let this happen to you. Get to a pain management specialist. Good luck! Lynne

i did go to a pain management clinic for two months. they gave me percocet then tried me on loritab, neither did nothing. I was surpriied i dontl know why my body doesnt' respond to pain meds, i've never taken pain meds in my life til ms. I may go back and give them a try again, i really didn't like them, they made me feel like i was lying or something. and barely wanted to give me loritab. they dont think my pain is bad enough for someting stronger. I dontl know, i'm very frustrated. thanks for all the replies.

I've been experiencing EXACTLY what you describe for months - it is to the point that I hardly walk anywhere anymore and I feel like a hermit.

My understanding is that it is spasticity and that the muscles in my lower legs are constantly tensed up, and possibly slowing down the circulation to my legs and feet. When I need to use the muscles they are already tired so they become fatiged easily and then the nerves get sensitive and hurt.

I take Zanafled and Lunesta when I go to bed - the Zanaflex puts me to sleep and loosens the muscles and the Lunesta keeps me asleep through most of the night.

I have been going to Aqua Therapy for a long time now and the exercise does help - it allows more blood to flow to my muscles which are spastic and always tensed up. My therapist also does "trigger pointing" which means that she digs her thumbs into the tight muscles to loosen them up. It hurts, but not any worse then my legs already hurt, and done often enough it can really help.

Good luck to you, I know how hard this can be to live with.

Thank you Rachbach for your reply. For once in my life it seems somebody knows what i talking about. My neuro doesn't seem to understand for care. I've been this way for the most part since 2005 but is getting worse.

ughhhhh......relentless!

I have the same problem. constant leg pain from the ms. I"m really sorry that you had such a bad day.....and i'm new so forgive me resurrecting an old thread

Seems to me those with the bad PAIN in the legs are all on our own. I went to the pain clinic yesterday and they weren't very understanding at all, infact I felt like he didnt beieve me , he would not give me a prescription for anything stornger than ultram and a very small amout of loritab. it was a waste of time and money to go. I'm gonna try and give nuerotin a atry again. Last time i tired it i was up to 1800mg. but you can go to 3600mg. i don't like nuerotin, its sedating and makes me feel zombie but im getting deserate.

Carolinagirl,

I know exactly what you are talking about. I suffered from this for several months and it was horrible. It got better after I was on Copaxone for a couple of months and it will still flare up at times but never as severe as it was prior to going on the shots.

For the life of me, I could not figure out what on earth could be causing such a mixture of symptoms from my knees down and it takes a toll on a body dealing with constant pain. But, you already know that!

There are other meds along the lines of neurontin that you may not respond to with the brain fog. Maybe you should ask your Dr about trying another one of those. The one I can remember are Topamax but I know there are more.

Many people get relief from Lyrica too.

But, your Dr should be very aware of these symptoms and have an idea of what to do for it.

I hope you are able to get some relief. The only thing that really helped me when it was so bad was one of the cooling gels and also the aqua therapy machines but those treatments can end up being costly.

I had recurring pain in one leg that quit responding to the high dose of Neurontin (over 3600mg/day) I took. My neuro prescribed Lyrica. It took a LONG time to start working - about 8 weeks. The drug info supplied stated it could take up to six weeks to work. However, one of the side effects is drowsiness; for me it is worse than Neurontin but better than the pain. Good luck to you.

so do you think lyrica is better than neurotin? or all they about the same, i dread going through this medication not knowing if it will even work, i feel bad enough, not looking forward to feeling like a zombie, but i guess i have to try and at least rule it out if it works aor not. Also, i stopped taking my copaxone 7 months ago, i never thought it did anything for me and i got tired of being a pin cushion. should i go back on it.?

Sorry you had to stop working . Maybe you can relax more and have your legs relax too....please talk to your doctor about what can be done. ... and take it easy. My feet are always cold so I'm in my snowboots most of the time....what a fashion statement!

Carolinagirl, I have the same thing. And I'm on Copaxone. What I was told by my MS specialist is that you have to treat your symptoms. Copaxone does NOT treat symptoms. It only slows the progression. And I won't know anything until I have another MRI a year after the first one, to compare it with. I think I've been on just about every med available, and nothing has helped with my feet and legs. Good luck. Hope you find something that works for you.
Karen