Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hello all,
I would like to say I'm sorry to the people I hurt with my posting/reply. I have been rude to yall when I should have explained my self.
First off about my bipolar. The questions asked of me concerning my mental status were valid. I should have just said: yes, I do take my meds properly and rarely skip. My bipolar is pretty hard core. I will in all likelihood never be completely stable. My pdoc (psychiatrist) tells me my biggest issue is "poor impulse control".....yeah I'm laughing at myself on that one and definitely seeing the irony.....so I should have answered civilly. As for the idea that I seem so intense about the whole MS THING...yeah I am really intense bout it. My MRI came back negative for MS and even the MS Specialist looked at it for free for me and said, "no signs of MS".
So most people would just let go. They would give a sigh of relief and just start being happy again. Well, unfortunately, thats where my birthdate gets me in trouble most of the time and it has nothing to do with my having bipolar. I am a Taurus and I am extremely stubborn. Put it this way, there is something way more seriously wrong with me than fibro.I don't know what it is but I'm not giving up until I find the answer.
That brings me to another apology. Someone replied that she does not believe in fibro. I should have just let that alone. Besides I know in my heart of hearts that she did not mean it in an ugly way. I just intrepetted it wrong. This is what I do know: fibro dx calls for a finding of 11 tender points out of a total of 18. I have all 18 of them. Believe me when the doc gently pushed on those points it felt like she had, with one movement, cut a hole in my skin and lit it on fire. Plus I have a bunch of other symptoms of fibro, so thats how I got the dx.
The person who does not believe in fibro was not calling me a liar because I have fibro, she was restating her opinion that she believes that people with fibro really have something else going on with them and since the doc can't find out what is wrong with them then it is convenient for the doc to have a catch all like fibro. I can relate to this actually because my doc has told me many times "well I wouldn't worry bout it, its probably just your fibro". I am sorry for taking what you said the wrong way.
Now, having said I am sorry and most importantly meaning it I would like very much to come back to this board. I have answered a post already because I could not resist. I have seen several others that I would like to reply to as well. Plus I really would like to post again myself.I am still having issues, despite what my MRI says.
My MS "hug" can be explained away as something called..corticosteroids..yeah I know, thats medicine, but the word for it is berry similar in spelling. Fibro people get it and supposedly its pretty common with them. BUT....not many have heat issues and the ones who do have heat issues do NOT experience flare ups from it. PLUS they do not understand how my worst season for pain and other issues is summer. Their seasons are the cold, wet months...similar to folks with RA. I DO have problems with rain, but cold months? Thats when I'm feeling my finest.
So I am sorry bout the length of this. That is something I will promise you guys...my friends, I hope...that I will try my hardest to keep it short. Actually that is what one of my posts is gonna be bout. Vision problems...
Friends,
Irish
I would like to say I'm sorry to the people I hurt with my posting/reply. I have been rude to yall when I should have explained my self.
First off about my bipolar. The questions asked of me concerning my mental status were valid. I should have just said: yes, I do take my meds properly and rarely skip. My bipolar is pretty hard core. I will in all likelihood never be completely stable. My pdoc (psychiatrist) tells me my biggest issue is "poor impulse control".....yeah I'm laughing at myself on that one and definitely seeing the irony.....so I should have answered civilly. As for the idea that I seem so intense about the whole MS THING...yeah I am really intense bout it. My MRI came back negative for MS and even the MS Specialist looked at it for free for me and said, "no signs of MS".
So most people would just let go. They would give a sigh of relief and just start being happy again. Well, unfortunately, thats where my birthdate gets me in trouble most of the time and it has nothing to do with my having bipolar. I am a Taurus and I am extremely stubborn. Put it this way, there is something way more seriously wrong with me than fibro.I don't know what it is but I'm not giving up until I find the answer.
That brings me to another apology. Someone replied that she does not believe in fibro. I should have just let that alone. Besides I know in my heart of hearts that she did not mean it in an ugly way. I just intrepetted it wrong. This is what I do know: fibro dx calls for a finding of 11 tender points out of a total of 18. I have all 18 of them. Believe me when the doc gently pushed on those points it felt like she had, with one movement, cut a hole in my skin and lit it on fire. Plus I have a bunch of other symptoms of fibro, so thats how I got the dx.
The person who does not believe in fibro was not calling me a liar because I have fibro, she was restating her opinion that she believes that people with fibro really have something else going on with them and since the doc can't find out what is wrong with them then it is convenient for the doc to have a catch all like fibro. I can relate to this actually because my doc has told me many times "well I wouldn't worry bout it, its probably just your fibro". I am sorry for taking what you said the wrong way.
Now, having said I am sorry and most importantly meaning it I would like very much to come back to this board. I have answered a post already because I could not resist. I have seen several others that I would like to reply to as well. Plus I really would like to post again myself.I am still having issues, despite what my MRI says.
My MS "hug" can be explained away as something called..corticosteroids..yeah I know, thats medicine, but the word for it is berry similar in spelling. Fibro people get it and supposedly its pretty common with them. BUT....not many have heat issues and the ones who do have heat issues do NOT experience flare ups from it. PLUS they do not understand how my worst season for pain and other issues is summer. Their seasons are the cold, wet months...similar to folks with RA. I DO have problems with rain, but cold months? Thats when I'm feeling my finest.
So I am sorry bout the length of this. That is something I will promise you guys...my friends, I hope...that I will try my hardest to keep it short. Actually that is what one of my posts is gonna be bout. Vision problems...
Friends,
Irish
Looking forward to your new posts,,
Alma
I am so thankful for the wonderful welcome back!! You guys have really made my whole week and then some!!
Alma, I really like your daughters quote. It fits me and my whole entire family. We are German and Irish...on ALL sides, even my husbands mom and dad. What I have noticed bout our inherited traits is that we all have bad tempers, just like the Irish and German. And me, personally, I am really so Irish in my temperament. I am very charming, have great wit, and a good sense of humor...but...I also take things the wrong way sometimes and get my feelings hurt too easily. Thats what this whole mess was bout. But I am gonna take your daughters quote and write it on a small poster board and decorate it and brush on Mod Podge so it will be hard like a real picture and have my carpenter dad make a frame for it, then I will put it in the game room where the whole family will see it all the time and maybe it will rub off on us!!
Thanks again everyone and God/Goddess bless you all!!!
I truly appreciate the second chance!! As far as apologizing, well I reckon its one of the things I have learne. d how to do and to do so gracefully. Believe me guys I may be a Texan and an American but deep in my heart and soul I am pure Irish.
And like most Irish I tend to jump on the defense just a tad to fast.I lash out without thinking things through. I am really like this in real life as well. My husband is as Irish as me when it comes to anger and not knowing when to keep his mouth shut..
Tickey my little hick friend...lol!!!...you my sweet will always without doubt be the silliest of sillies.. ;-% (thats you rolling around on the floor with your well trained hubby!!!)....luv ya sweetie!!!
Lynne, thank you once again for the true grace you have shown in welcoming me back. I will be a good girl from now on. I was just feeling like every one was ganging up on me. I felt like people didn't want me on the board because the docs said my MRI was clear. I guess I felt like no one believed me here any more. That it was just another group of people who thought I was a hypochondriac, and especially knowing that I was bipolar. Bipolar people, when they are manic become drama queens deluxe!!! So it may not be unusual for a bipolar person to do everything in their power to get others to notice them.
I promise to you Lynne I am not one of those. Bipolar is old news to me. As a matter of fact its now reversed with family and friends. I used to talk bout my bipolar all the time...learned in therapy that it was perfectly normal what I was doing, I was in a sense excorsising the demon that had basically wrecked my life. So believe me what is going on now with me is REALLY going on. I am so frustrated because I know I have more going on than just fibro.
I wish I could have said I was sorry to the woman who asked me bout my bipolar. I was so mean to her. She was only trying to help me but I lashed out without thinking. All I saw was BIPOLAR...MUST BE HYPOCHONDRIAC...
Then the other woman who talked bout how she did not believe in fibro and how her RA test numbers were higher than mine and no one said anything bout her being dxed with RA....all I saw with that was...LIAR, LIAR, PANTS ON FIRE!! It was so distressing to me becuz I thought this is my support board, no one will ever judge me here. I know she did not mean those things the way I heard them.I would rally like to say I arm sorry.
If you could tell me who they are, maybe in a message? My fone is messed up some how cuz I don't get pics of anyone any more.I would know them by their pics but I'm not able to do it that way. I
What I was also trying to say is that often we want one diagnosis to cover everything. After all, if we get that then we can get some treatment and that might help it all at once. But sometimes it's not that easy. It's VERY possible that you have MS and that all of your doctors are overlooking it and misdiagnosing you. On the other hand, it's just as possible that all of your symptoms aren't related at all and that they're part of your other medical conditions and they're just one big mean coincidence. And then, there's the third option: that you have something that's so rare that it's just not showing up on the radar.
My kid is the only child in our entire state that has her medical condition. You wouldn't believe the symptoms she has that you would think would be entirely unrelated. It's so rare that toxicology doesn't even test for it on autopsies, making me wonder how many babies' deaths get labeled "undetermined" when it was, in fact, something really obscure that they're just not equipped to look for (like my son's death).
I have Ehlers-Danlos Syndrome and you get a bunch of us in the room together and even with the same diagnosis it affects us all differently. I, for instance, am the only one I know who's had internal organs rupture. (That can be part of EDS, but it's rare.) With my Chiari Malformation there are more than 50 documented symptoms associated with it.
When you know there's something wrong then you need to advocate for yourself and push for it. But part of advocating is sometimes being able to stand back and look at the situation and reassess it and then figure out where to go from there.