Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

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cloudsintheysky 07/04/2014

I sometimes feel very down about having MS. Life can be so challenging at times. I always thought that when I was first diagnosed that I could beat this or something might help one day to reverse the dammage, but now I am really wondering as I watch the years go by. Are you hopeful that something might really help us?

HCARD 07/04/2014

I was DX in 90 but had symptoms since 12 yrs old. I try to stay as active as possible but have also change most everything in my life to fit my disability and/ or ability . I am 58 and don't see a "cure" in my future. I have learned to accept I can't go shopping, for a walk, swim in the sun, sit in a hot tub or even be sure tomorrow will be a good day. The acceptance took a elephant of anger, dispair and sadness for what I lost. It also am able to be happy, yes happy for what I can do. Sorry I can't offer more, just my experience.

lorrieonline 07/05/2014

You mentioned it so yes, I am very hopeful. It's not just hope though. It's faith based on research and feedback. Bio-feedback as a matter of fact. I've read that our nerves are able to find alternate pathways when we use a progressive method of exercise. My challenge is in keeping myself going, pushing. I am certain the progressive exercise can improve symptoms. I've seen and heard about miraculous recoveries based on hope, faith and hard work.

In addition to exercise, a diet specifically for MS also brings hope. I do feel more energized since being on the Wahls Paleo Plus Protocol. I'm very hopeful that between exercise and diet, I'm going to see some great results. It's not easy to be perseverant but it is a heck of a worthwhile challenge.

dxat59 07/06/2014

I'm also on the Paleo diet and it does help, me anyway. Yes, having MS is not like getting asked to the prom by the captain of the football team. But, it's not a death sentence either. Like I always say:

"It's just another boil on the butt of life. It may be painful, but it won't kill me."

Gentle hugs, Linda

cloudsintheysky 07/06/2014

Thanks everyone for your kind words. I am interested in trying the Wahls diet now. I think I must continue to work on acceptance and try to focus on the things I can do.

RiS 07/06/2014

When I worked at a bakery during my high school years they had no AC. I left and a few weeks later they got AC. This is how I feel about my MS. I'm hanging in there and hoping for my AC!

ChrissyH 07/07/2014

I also have changed my diet, not 100% Paleo but very close. I also began doing Yoga for MS. I have become more willing to use my Raskel to conserve energy, even though I am able to walk.
One thing I have learned on here is to HAVE FAITH NOT FEAR.

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