Multiple Myeloma Support Group
Multiple myeloma (also known as MM, myeloma, plasma cell myeloma, or as Kahler's disease after Otto Kahler) is a type of cancer of plasma cells, immune system cells in bone marrow that produce antibodies. Its prognosis, despite therapy, is generally poor, and treatment may involve chemotherapy and stem cell transplant. It is part of the broad group of diseases called...
I was just diagnosed on Friday (2 days ago). I had MGUS for 6 years and got in the habit of hearing the doctor say that my numbers were still "suspect" but not changing and not yet MM. I got to the point where I seriously thought I would NEVER get it. Then came the dreaded days when he told me that my numbers were bad and he wanted to start me on Velcade next week. Although I am over 60 years old and one of those big ole tough guys, it came as not only a shock, but I must say, I teared up a bit. So now I know what it is like to not be able to dream and plan for retirement in 10 or 15 years. It just is very depressing to not have that optimistic thoughts about the future. That is probably the biggest deal, but I also as very scared about treatments and the possibility that treatments won't work and I will have further damage of my body. Basically, I am a mess right now. It is better when I talk about it. When I just lay in bed, all I can think about is death and no future. I am looking forward to when I am as strong as the rest of you all. I am looking forward to learning more about treatments. Please forgive me for the negativity.
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I went to the doctor a while ago to see about my allergies. He rubbed my arm and stuck things under the skin. Nothing. He poked and prodded, his phlebotomist drew so much blood people thought that we were dating. The tests all came back negative. Then one day I went back and I told him that I had found the cause of my allergy.It turns out, I am allergic to betrayal.
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This isn't really bipolar related but there is never anyone on the parenting groups, this is the most active group I've been in.My 6yr old son has really bad seasonal allergies and they're in full force right now. He gets a terrible cough; he coughs all day and all night, making it hard for him to sleep, and his nose runs.I've tried every allergy medicine, OTC and RX, and none of them affect his...
Sorry to hear of your news. I am amazed at the length of time some people have been functioning and living with this cancer, and you are one of them (Mgus 6- years) I can say from personal experience that it is a shocker each time I have gotten the "news", once at diagnoisis and then at relapse. Its important to remember you are not alone : )
I think we all were made with that inner believe or feeling that we are going to live forever. Be of good cheer, God has a plan : )
I hope and pray that your treatment of Velcade goes well.
Ed
Is anyone here participating in clinical trials?
You all are in my prayers and please add us to yours...