I have a project on Morgellons I'm hoping to finish someday. I've already posted some of the information in my thread "Anyone Heard of This?" - but my life is in turmoil, I'm not very well, and my memory isn't good so I'm having to go over everything all over again already.
As I do, I continue to be hugely impressed with the research done by Virginia Savely, Ron Wymore, and Marianne Middelveen especially, and by some of the papers they've published. although I admit that even I was a bit skeptical of some of it at first.
I'm also very impressed with the amount of focus they've put on specific infections associated with Morgellons, and I sympathize very much if only because I have at least one diagnosis myself that has been consistently associated with spirochetes, although my skin lesions don't seem to have any of the characteristic Morgellons features.
I know what a hard time it seems to be to get doctors to take this disease seriously, so what I'm wondering is if anyone has ever tried showing any of that research to a doctor, and if so, if it's helped them to take Morgellons any more seriously, or if it's helped to inspire any constructive measures such as antibiotics?
I'd be curious to know if any Morgellon's research may have helped anyone in any other ways, too.
If anyone thinks it would be helpful, I can try to round up some of my materials and post links, although I'm not surprised if anyone here already knows their way around the research materials much better that I do.
Thanks in advance for any replies. Wishing, as always, help and hope for people who put up with this awful business.
I have some thoughts about my COPD diagnosis that I'd like to share. I'll post them in the next post in the thread so I can correct mistakes because I've never figured out how to correct the first post in a thread on DS.
My husband was admitted into ICU 11/8/18 from a bad asthma attack & stayed there for 11 days. They said he has COPD & sent him to rehab to get his strength back. After 7 days in rehab they told us he has end stage COPD & called in Hospice to bring him home. He didn't get out of the bed for several days but now he's wanting to go to the bathroom, so I help him with his walker. It really gives him...