Mononucleosis Support Group
Infectious mononucleosis (also known in North America as mono, the kissing disease or Pfeiffer's disease, and more commonly known as glandular fever in other English-speaking countries) is a disease seen most commonly in adolescents and young adults, characterized by fever, sore throat and fatigue. It is caused by the Epstein-Barr virus (EBV) or the cytomegalovirus (CMV)....
I tested High for ebstein barr .. My doctor can't say for sure that it's Causing the symptoms i have.. Ive heard mono can cause neurological things.. I'm having some joint pain muscle twitches wierd muscle aches tingly feelings in extremities.. Pressure that travels around my head..Tingles in mouth aches in teeth. Tested negative for auto immune disease and negative for Lyme all tests are normal.. Ohh an pavrovirus b19 was positive dr didnt think that wad too significant.. He said it's possible I have mono.. I have felt this way for over 4 months.. What y'all think??
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
My mono was hard to diagnose, but I kept pushing and pushing them to run more test- and sure enough, it appeared.
I as down and out for 9 months.... I almost went to an infection disease doctor.... my EBV levels are still high, and I tend to get mono relapses if my stress is high or if I have cold...
I am sorry you are going through this...it's awful
My 1st flare lasted 18-24 mths, then was better off & on but never quite the same. I am now at very hi titers on EBV labs. Hope your journey is short & back to normal soon. I really feel more realistic information should be out there for us, I'm a make lemonade out of lemons type girl, this can kick some people's but, so do as much research as you can, be as informed as you can & a good rule of thumb is to always remember "doctors are our consultants, they will only do so much due to various reasons. You are your best advocate, don't rely on a doc, you might have to insist on what you feel you need & make it clear to your doc that you know your body better than him/her & any lab sheet, labs are only good if all heaven & earth line up just right!! Research baby is the best way to get informed on this nasty virus! I don't mean to rant , but I so hope any of my experiences can be lessons, help, whatever for people in this EBV roller coaster. EBV, for an unknown reason, can be associated w/ Lupus, go figure? I also have MG now Hypothyroidism & Myco Plasma Bacterial Pnuemonae, yep I'm saying what you are probably saying now... WTH! Eat as clean & healthy as you can... Get off gluten & sugar, that's good for your body anytime. Drink lots of water & pure concentrated cranberry w/ no additives & dilute w/ water , add a spritz of lemon if you like! The very best to you:)) MeLisa