i found this im sorry for your loss but you really should have gave that baby a chance my daughter had a gene disorder and i decide to carry her anyway but she diced to leave me at 18 weeks i well never regret the time i had with her. even though i never got to hold her i still knew her. sometimes there wrong you can find storys on the net all the time where they are. they werent wrong about my sonya she shouldnt have made it as far as she did. you never know what can happen. here is what i found about it:

Other changes in the number or structure of chromosome 22 can have a variety of effects, including mental retardation, delayed development, physical abnormalities, and other medical problems. These changes include an extra piece of chromosome 22 in each cell (partial trisomy), a missing segment of the chromosome in each cell (partial monosomy), and a circular structure called ring chromosome 22 that is caused by the breakage and reattachment of both ends of the chromosome.

Cat-eye syndrome is a rare disorder most often caused by a chromosomal change called an inverted duplicated 22. A small extra chromosome is made up of genetic material from chromosome 22 that has been abnormally duplicated (copied). The extra genetic material causes the characteristic signs and symptoms of cat-eye syndrome, including an eye abnormality called ocular iris coloboma (a gap or split in the colored part of the eye), small skin tags or pits in front of the ear, heart defects, kidney problems, and, in some cases, delayed development.

A rearrangement (translocation) of genetic material between chromosomes 9 and 22 is associated with several types of blood cancer (leukemia). This chromosomal abnormality, which is commonly called the Philadelphia chromosome, is found only in cancer cells. The Philadelphia chromosome has been identified in most cases of a slowly progressing form of blood cancer called chronic myeloid leukemia, or CML. It also has been found in some cases of more rapidly progressing blood cancers (acute leukemias). The presence of the Philadelphia chromosome can help predict how the cancer will progress and provides a target for molecular therapies.
hope this helps you.

Actually, my daughter had conmplete trisomy 22... she had absolutely no chance at all.. it effected every cell in her body. thanks for the information..

neather did mine the disorder she had was so rare they have never found it in a living baby. most do not live past 2weeks after concaption and they never saw a baby live as long as she did she had no chance at all we knew she would never make it to term we counted the days that we had her after we found out. my doctor was dumbfounded she could not telling me a reason why she would live so long. the longest they had seen a baby servive with this was 9 weeks and that was only in 1 case. we had a hard time getting pregnant but the doctor said we proble do get pregnant the babys just died before i know im pregnant. it feels horrable knowing that i may be losing a baby andd not even knowing it. i have strong views on things and i am sorry if i came off harsh that is just how i feel. i'v been there i know how it is its hard to hear that your babys going to die no matter what you do. its even harder to hear you may never have another baby in your arms when your only 24. im not judging you or saying that your wrong please understand that i did not mean to offend you. my daughter had a deleted and translocation in the 21 chromosome i can not find any info on it and theres not much the doctors can tell me because there has never been a baby born alive with this around here. sorry im rambling but i just wanted you to know i'v been there gene disorders are horribal.

I'm so sorry for your loss. I don't know anything about trisomy 22, but I just want you to know I understand why you chose to end your pregnancy. I don't know what decision I would have made, but it was your very difficult decision to make. It was a horrible position to be in, and I pray that time will heal your pain.

onelmichele, first I want to say I'm sorry for your loss. I know it's hard and you did what you did because it was the right choice for you with the information you were given. I carried my 3rd child to term after she was given a diagnosis of anencephaly. Totally different birth defect from the trisomy kind but fatal nonetheless. It doesn't make it easy. I know you are beating yourself up for having hte d&e, but you did what was best for you and your family. I thought that it would never get better, but 11 months after my daughters death, I have found a different state of normal/happy.
I think that much of what you are feeling is the grief from this loss but also the grief from the loss of your stillborn at age 24. Any unresolved grief from the first loss will be compounded in the 2nd loss. I hope what I am saying makes sense. I don't know what information you have gotten from your doctor or from the internet but maybe it's a good time to find a grief counselor. Does your hospital have a perinatal loss support group? Check the local hospices they might have bereavement services that you can use to help get through the initial wave of grief.

Bottom line, you did what you did because it was best for you. Others might not have chosen your path but they also don't have your history as well. Each of us is different and so are our experiences. I think everyone has a bit of guilt as part of their journeys through grief, you know the what ifs. You and your family are in my prayers and if you need to talk, I'm here.

I just read your message again. and I must say I think it was very cruel to say I should have given that baby a chance. a chance of what? a chance to be born dead? she didn't even have a chance to have illnesses... it was simply a death sentence.

Hello. I know all the trisomy disorders. My daughter died from a rare genetic disorder not trisomy. She was tested for every single one of trisomy disorders. . I want you to know I respect both you and your choice. I carried Ava to term. These disorders are considered a "fluke of nature" disorder, which means it only occurs once. I would seek genetic counseling, if it makes you feel better. Was a cause ever determined for your still birth, when you were 24? If it makes you feel better, I was only 28 years old, when I conceived Ava. She was a planned pregnancy. I wish I had beeter word s here. Sometimes, stuff happens. I know we have made different choices. Please know I support you and your choices. I have recently had a D&E due my healthy son dying from a blood clot going through his cord at 4 months. Ava was my first. I did go on to give birth to my toddler, who is healthy and independent. Now I have been mcs due to a blood clot disorder. It's an independent condition. Please let me know what I can do to support you.

i just ment they could have been wrong that was it. please do not take it the wrong way. thats all ment you never know what could have happend. thats all i ment. sorry if i offended you its just what i believe.

I am so sorry for your loss. Words cannot express how difficult it must have been to make that decision.

I'm so sorry to here of your loss. I haven't heard of Trisomy22 but I recently had d&e because my baby girl had Trisomy21. It is a hard decision. My problem is I keep thinking that if I carried full term a miracle would have happend and my little girl would be healthy. I can't get over the pain either, you're not alone and if I can help, I will be here for you.

I am so sorry for what you are going through. I have no idea what trisomy 22 is, but I think you made the right decision. My sister just delivered a stillborn on April 20, 2007 (no reason at all...they just think the placenta detached) and I could NEVER imagine her or anyone going through that. I know none of us will EVER be the same.

My daughter Amelia had Down's Syndrome, and she just didn't make it; she passed away somewhere between the 10 and 13 week. I work with children and adults with a whole range of disabilities, so I know Down's would have been one of thelesser disabilities to manage, and I still with every day I had the chance to raise her, knowing I work in the exact place I would need to go to for help. I know people with Down's typically have heart problems among other things, some much worse than others. I hope you can find peace in your decision. It would not have been my choice at all, but I do not judge you for yours and know you did what you felt was necessary.

I am sorry, I posted to the wrong person, I know now your baby had trisomy 22. I do know children who have survived that as well, but it is a much more severe disorder. I do understand your decision. I hope you can find peace with it.

I havent heard of it, but I know that the genetics testing of today is very reliable. Any severe diagnosis, and the labs will confirm the findings before reporting them. You made the decision you did with your doctor's advice and knowing all the circumstances that makes everyone's choice different. I am sorry for the grief and pain you are living with, if you need someone to talk to, send me a message. Take care of yorself, so you can take care of your family, I am sure they are hurting also.

HI Michele, I am so sorry about your loss. You made the right choice for, you your family and your daughter, dont ever let anyone tell you, you didnt. I made the choice at 25 weeks not to carry my son full term after we where told he had Trisomy 9. It was the hardest thing I have ever dont. He was given a 0% Chance. My thoughts are with you.