Migraine Headaches Support Group
Migraine is a neurological disease, of which the most common symptom is an intense and disabling episodic headache. Migraine headaches are usually characterized by severe pain on one or both sides of the head and are often accompanied by photophobia (hypersensitivity to light), phonophobia (hypersensitivity to sound) and nausea.
Hi, I have had migraines for nearly a decade. Bit of a long post (sorry). They started randomly. I inherited them from my nan. I have them once a week for three days. I have tried so many medications to prevent them. Propanolol (caused chest pain), ampitryltaline (passed out at weird moments in the day) nortryptaline (didnt help), topiramate (dangerous effects I was suicidal and really aggressive . Also had vivid nightmares which made me scared to go to sleep. Nearly lost my 9 year relationship and my job). I have been on candersartan 16mg for 6 months. I now have painful but easy to an extent to manage ones 1.5 weeks apart, then once a month I get a really bad one. I take sumatriptan for the pain as no other painkillers work. I have seen a neurologist and had an MRI scan and it came back clear 2 years ago. My question is, how do people keep positive? I find it hard not to feel hopeless when I cant move my head or eyes for 4+ hours in a day, throwing up acid and even the sound of my own breathing is too loud. Just feel sometimes that I'm never going to have my life back.
I try my hardest to think about the times in my days when I don't have as much pain. I have spinal issues and a bad hip that needs to be repaired surgically. On top of weekly migraines that double in intensity and frequency when I am expecting my period. But if I focus on other things I can actually enjoy myself a bit. I actually got to go kayaking the other day and was pleasantly surprised that my head didn't hurt. I struggled to get out of the kayak but I still had a good time!!
Try to find something positive every day and write it down. Even if you have a migraine that day. Try to find a positive thing and write it down. Then when the negative feelings start to hit you can go back and read your positives and feel better.