Migraine Headaches Support Group
Migraine is a neurological disease, of which the most common symptom is an intense and disabling episodic headache. Migraine headaches are usually characterized by severe pain on one or both sides of the head and are often accompanied by photophobia (hypersensitivity to light), phonophobia (hypersensitivity to sound) and nausea.
I always travel with medication, just in case, so that when I go to a function and start feeling the warning signs I can pop a pill and hope it stops the migraine in its tracks. Friends don't even notice what I do as they are so use to it now. If I do have to go home I just alert them that I have to go due to the pain building up. 9 times out of 10 I get thanked for coming and told next time we will have heaps of fun. Sometimes I have to call on the day and say I can't make it and everyone is fine with that as they understand migraines don't care about our social life.
I once went to my brothers with a migraine just because he had baked me a birthday cake. I felt I had to show up because of the effort he put in. I only stayed 30 minutes and the kids ate most of the cake. My brother wrapped up a slice and sent it home with me. Because he knew I can't help the migraines he wasn't fazed by me having to leave early.
I found people accept migraines but are less accepting of chronic pain. Perhaps it is because just about everyone has experienced a headache and can then slightly understand the pain of a migraine. Not many have experience pain that lasts continuously for months/years.
Good friends always understand and for those that don't, offer them some information to help them understand that migraines just happen, but they do not define you as a person.
I also always carry my painkillers for my RA and my migraine meds with me so that I can try to have fun with my friends and family. And my friends - most of them, at least - understand that there are some activities that I don't really enjoy - like things that involve lots of walking or being out in hot sun, which can trigger headaches. So I deal with the fact that they don't invite me to things I wouldn't be able to go on, and they plan activities with me that I'd enjoy doing with them. Sometimes it kind of sucks because I wish I could do more, but those are the limits of chronic pain.