Hi, about 3 years ago after having brain surgery to remove a benign tumor, my sensory system got amped up. And after a time I was somewhat casually diagnosed with getting an, A typical migraine. Brought on by "chemical" smells.
In the passed I had gotten migraines, due to some med I was put on or taken off of. And a few other times. After my first migraine, I called my sister and profusely apologized for not taking her migraines seriously when we were growing up. OMG! They're not just a bad headaches. I finally understood what she meant when she said, she wished she could levitate. And I'm beyond thankful I haven't had that kind in many years. So just to say I do Know what it feels like to have a migraine.
For me with this "A typical" migraine, I get the brain fog, can't: concentrate, pay attention, think clearly, formulate cognitive thoughts. I get light headed and dizzy. I get the Light and noise sensitivity. But what I dont get is the pain, or light ora. I get more of a..., hard to explain, a mild aching pressure feeling. The first time it happened I felt like I hit a wall or something. Stopped me dead in my tracks. I had no idea what was happening. I didn't know it was all the chemicals i was smelling in the soap isle. All I wanted to do was lay down and sleep. That was the only thing that helped at the time. Time and knowledge has helped so its not as intense. It could last from an hour up to 24. Was put on depakote for it. Horrible! Med. Helped some with migraine but made me seriously depressed, messed with my hormones and it made me want to drink. I had to stop. I can get away from a smell, I can't get way from myself. Like I said it's been 3 years and the best I can do is plug my nose as soon as I can to ward off or seriously lessen the symptoms. And smell the essential oil of rosemary. Now that has had the biggest effect, in making it go away. Was told it works for all migraine types. I carry it with me always now. However it doesn't prevent them from coming. Not for me anyway. Nor does it help when the chemical smell or combo of different smells is to strong for me. The other day I went into a small restroom, that had way to many different scented airfreshners. I felt like I hit the wall again. I got all the full on symptoms again. I was glad my girlfriend was driving. Asprin, rosemary and sleep. Helped but this one lasted till the next day. Ugh this migraine smell thing can really interfere with my life.
Does anyone else get these, or know of someone who does? I'm curious to see if I'm not totally alone.
I’m going to be attending some educational lectures on mental illness for my job soon - I’m dreading it because I hate how MH problems get presented to the public; they are presented very negatively. Not everyone with a diagnosis has all of the characteristic and many are high functioning. I just feel like I am crawling out of my skin when I hear someone try to “teach me” what...
I am inviting you to participate in a study on experiences with chronic illness. I am a scholar that has been managing a chronic illness since my diagnosis at 19 years old. Through the years I have seen the affect my chronic illness has had not only on my body, but on my identity and overall well-being—both positive and negative. Research on the social aspects of chronic illness is limited and...