Migraine Headaches Support Group
Migraine is a neurological disease, of which the most common symptom is an intense and disabling episodic headache. Migraine headaches are usually characterized by severe pain on one or both sides of the head and are often accompanied by photophobia (hypersensitivity to light), phonophobia (hypersensitivity to sound) and nausea.
Hi, about 3 years ago after having brain surgery to remove a benign tumor, my sensory system got amped up. And after a time I was somewhat casually diagnosed with getting an, A typical migraine. Brought on by "chemical" smells.
In the passed I had gotten migraines, due to some med I was put on or taken off of. And a few other times. After my first migraine, I called my sister and profusely apologized for not taking her migraines seriously when we were growing up. OMG! They're not just a bad headaches. I finally understood what she meant when she said, she wished she could levitate. And I'm beyond thankful I haven't had that kind in many years. So just to say I do Know what it feels like to have a migraine.
For me with this "A typical" migraine, I get the brain fog, can't: concentrate, pay attention, think clearly, formulate cognitive thoughts. I get light headed and dizzy. I get the Light and noise sensitivity. But what I dont get is the pain, or light ora. I get more of a..., hard to explain, a mild aching pressure feeling. The first time it happened I felt like I hit a wall or something. Stopped me dead in my tracks. I had no idea what was happening. I didn't know it was all the chemicals i was smelling in the soap isle. All I wanted to do was lay down and sleep. That was the only thing that helped at the time. Time and knowledge has helped so its not as intense. It could last from an hour up to 24. Was put on depakote for it. Horrible! Med. Helped some with migraine but made me seriously depressed, messed with my hormones and it made me want to drink. I had to stop. I can get away from a smell, I can't get way from myself. Like I said it's been 3 years and the best I can do is plug my nose as soon as I can to ward off or seriously lessen the symptoms. And smell the essential oil of rosemary. Now that has had the biggest effect, in making it go away. Was told it works for all migraine types. I carry it with me always now. However it doesn't prevent them from coming. Not for me anyway. Nor does it help when the chemical smell or combo of different smells is to strong for me. The other day I went into a small restroom, that had way to many different scented airfreshners. I felt like I hit the wall again. I got all the full on symptoms again. I was glad my girlfriend was driving. Asprin, rosemary and sleep. Helped but this one lasted till the next day. Ugh this migraine smell thing can really interfere with my life.
Does anyone else get these, or know of someone who does? I'm curious to see if I'm not totally alone.
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Hi All.... It's great to see all of the new people joining the site... I'm loving it!!...smileI'm not sure if people are aware that if you don't have Bipolar Disorder but have a loved one who has the disorder we do have a board for people to go to in order to share their experiences and seek friendship, support or adviseIt's the Friends and Family of Bipolar Board.... I hope you'll take a...
That's why I was hoping someone here might know about it. Sucks feeling like your the only one. And for a time nobody believed me. Thanks for the advice. I'll mention the Tristan to the doc.
Good luck to you.