Hello, I am a mother of a very challenging boy with an iq of 62. My story is long and takes many twists and turns. I got pregnant very young, at the age of 16. I delivered my beautiful baby boy, Joey on a warm, sunny day in September. From the moment I found out I was pregnant I did everything "right" I took my vitamins, ate properly, exercised and went to all my doctor's appointments. Being so young, I naively assumed this would guarantee me a perfectly healthy baby with a normal, happy life lying ahead of him. For a very short period of time this seemed to be the case with Joey. But several months after Joey was born I began to get this creeping sensation that something was not quite right with my baby boy. Call it mother's intuition, I guess. All of his well baby checks went splendidly and I was reassured that he was on the right track even if he was hitting some of his milestones on the later end of the spectrum. Besides the tugging feeling I had that something was wrong, I loved, loved being Joey's mother. He was such a delight in every aspect of his personality. He was the happiest baby, toddler and preschooler. Everyone loved him, kids and adults. He was and still is extraordinarily cute. I adored being a young mother and for the most part was able to squash that nagging feeling of something being not quite right. But then he started preschool. At his first parent-teacher conference, I was told he was very behind his peers. I was shown comparisons of work and art projects of that of his and his peers and was sad to see the huge discrepancy. My boy couldn't even put his pen and pencil to paper and scissors..forget about it..the whole concept to him was completely overwhelming I was told. She told me he was a complete delight to have as a student and that everyone wanted to be his friend. He was socially on task but had troubles sitting in circle quietly. I sought out advice from family, other friends who were teachers and even his nurse practioner and was told to give him some time...that he was probably a late bloomer. He continued on in to kindergarten and it was recommended that I have him tested for learning disabilities. I allowed the school to do their full workup on him and also had him privately tested with a family friend. The private testing revealed that he was overwhelmingly a.d.d and the school testing revealed that although he didn't have a specific learning disability, he was significantly behind his age group. Because of his diagnosis of a.d.d he was found eligible in the school system to have special education services. The school system and the private testing never did or never revealed a full scale i.q. to me He struggled through his first three years of elementary school. I cried a lot and my depression came in furious episodes as I tried to help this young man succeed. I trusted the school system and the private evaluator so I just carried on doing my best with extra tutoring for him and extra help from myself and my husband. At this young age he was still doing o.k. socially and seemed to have a group of really good friends. At the end of third grade he was retested by the school system because it is county mandated to retest every 3 years. Again they embarked on the comprehensive full work up and the plan remained the same. They never revealed or never completed a full scale i.q. They mentioned that he did have lower areas of i.q. in working memory, non-verbal, visual spatial but that his verbal i.q. was within normal range. They said that he was a bright child that struggled and that he was plagued with a.d.d. Even though we had tried various medications for him over the years for a.d.d his situation never improved greatly. At the beginning of fourth grade, his special education teacher recommended that we have him privately evaluated by a speech-language pathologist and a developmental opthomologist. She also recommended that we take him to John Hopkins (Kennedy Krieger Institute) for an evaluation because she felt that something much larger was going on with him than just a.d.d ................To be continued............. I have to get ready for the day but would love to share the rest of my story. Happy Mother's day to all of you brave, wonderful and loving mothers (especially to those of you who have children with special needs)
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