Meniere's Disease Support Group
Meniere's disease is a balance disorder of the inner ear. The symptoms of Meniere's are variable; not all sufferers experience the same symptoms. However, "classic Meniere's" is considered to comprise the following four symptoms: Periodic episodes of rotary vertigo, hearing loss, tinnitus, and a sensation of fullness or pressure in one or both ears.
Hi I have struggled with menieres now for 2 years but probably longer but my diagnosis was in 2019, since the ringing and not hearing certain pitches started in my high school years (just thought it was from being a stupid teenager who listened to her music too loud). I have been able to adapt little by little but theres a few things i can't seem to find a good solution for such as certain pitches that are so high they hurt my ears and head. It's not always. My left ear is mostly affected with the deafness and constant ringing so ear plugs are not always a perferable option for me. So I am wondering if anyone else has this issue and if anyone has any suggestions on how to deal with this issue. I should also mention it seems my right ear is now starting to show symptoms such as a high pitch them deafnesd for a few seconds occasional ringing and ear drum pain. (It's not as bad as my left ear tho)
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Has anyone here diagnosed with ME/CFS been prescribed Repatha?If you tried it, did you have any reactions that 'normal' doctors didn't consider? Or, pain more severe, fatigue increased.I had a very bad reaction to statins decades ago so I've snarled at any doctor in regard to my cholesterol levels. My new doctor is more patient and homeo/holistic minded, but she's still pushing.I have an Rx for a...
To your high-pitch intolerance question, I was always like that. I'm pushing age 70, and when I was little we were shopping for a new TV in a department store. I didn't know why at the time, but I had trouble controlling myself and my emotions because I could hear so many high-pitched sounds no one else could seem to hear. I just wasn't old enough to articulate it, no vocabulary existed for that for a 6 year-old. I just felt there was something happening in my head.
Fast forward to working with high-speed duplicating equipment as an adult and placing a service call. When the tech arrived I told him the problem was coming back and he asked me how I knew. I said, "Can't you hear it?" It took him a few seconds but he was finally able to isolate what I clearly heard. He looked at me and said, "You can HEAR THAT?". That was what enabled him to fix the problem. I don't know if this helps you or not JM. Now I hear a sound like that in both ears all the time. Like the hearing test that never ends.
I have an in-person with a new ENT today, to see if there is anything that can be done about hyperacusis, other then wearing ear plugs everywhere in public. Even before Covid I couldn't be in a restaurant or at a gathering because of the noise levels, which would make the tinnitus worse. I had to give up volunteer work I loved because of it. But I did go to the fundraiser this month, and took noise protection ear muffs. The band was still too loud, and the increase in tinnitus has not subsided.
My tinnitus also worsened after my 2nd Covid dose. I had the Pfizer. I had a very severe rheumatic reaction to both doses, the 2nds one worse (in May). It's still not a ventilator though, and is finally subsiding just in time for me to get the booster.