so sorry about your constant vertigo episode and just wonder about your future treatment plan with ENT? take good care.

Thank u for replying,to be honest I haven't had much luck with ent doctors...I've tried quite a few tablets an had horrible Side effects with most of them,I have it in both ears....I follow the low sodium diet,and am thinking about accupunture coz the tablet route hasn't worked for me,the only thing I use to try an manage it at the min is cinnarizine...it's just that when I tell the ent people that I have a spinning sensation 24hours a day,they look at me baffled and don't know what to say to me....so I just wondered if any 1 else has it.

Hi dizzyjulie, I am new here too and have had MD for 35 years. Except for a wonderful remission of some years during my 40's. I have also had constant vertigo or imbalance like you. Doctors go by the book which says that the dizzies go back to normal between attacks so have trouble accepting it can be constant. I have learned from other groups that it is very common. As soon as the damage has started in the MD ear the messages to the brain from each ear are different, hence the imbalance, spinning starts. By the time I got my diagnoses I had already lost over 50% balance in MD ear so of course it was constant.
I cope by doing balance exercises, walking with a stick, staying as active as I can and spending as little amount of time as possible in places that make me feel worse, as getting worse brings on severe pressure. Stress is also another enemy of mine.
Good luck, you are not alone.

Hi crankoala,u have said just what I was asking the ent consultants....how come I don't have any normal periods between attacks,if that's how menieres is supposed to be,my ears must be so damaged to have this 24/7...I do try and do housework and go for little walks but even a little amount of excersise leaves me feeling like I'm stuck on a fast merry-go-round,and I hate how people just don't seem to understand or are'nt interested in even listening to how we feel...thank u for replying,I personally don't know anyone else with any type of vestibular disorder so I feel so alone sometimes,thanks for replying

I found that after years of trying to find out why, I decided to "accept" my constant imbalance and give up asking why and work on ways to improve my life. Without acceptance we can't move on. I started with Balance Rehab (can't think of the correct name right now) and found that a great help. My life is restricted, as is everyone's with MD, so whatever I do I like to push a little further each time. This has improved my self esteem and changed my attitude. It takes time and I always make sure I rest during the day and on bad days I do very little. I have learned to say no to people and live my life by my rules not by what I think others expect of me.

Crankykoala - was the balance rehab you mentioned called "Vestibular Rehab"? I agree with everything you said especially the acceptance and doing things on our terms.

Just recently I joined friends in what I thought was a perfectly "safe" outing and when it wasn't ok for me, I didn't leave and I paid for it for days. It's just not worth it. And no-one else has to go through what we do so we have to look out for ourselves and what's best to minimize our symptoms. Rest on the bad days and enjoy the good days! :)

"Vestibular Rehab"! Yes, that's it, just as well someone has a good memory.

Thanks Bridget1111

Your right...I have a very hard time accepting this,when everyone around you is normal and having fun in life and this gets me down so much,I feel like I'm known as the boring one...and also bridget1111 is right,I try and do stuff and say yes to people if they need anything from me....and I will pay for it for days so maybe I need to change some things.... :))

trying to find a good support group, friends and family to help you thru a difficult day. Depression and stress are MD enemy - namaste!

Hi olliedog,that is so true...but one thing I've learnt since having this is how judgemental people can be...I've been called a "drama queen" to I'm "exaggerating" my symptoms. To be honest,it is soooo upsetting coz I'm such an honest person an wouldn't do that..but I guess when they've never had it they can't even begin to understand :))

went out for medical leaves last year and so happy that i able to go back to work. MD has teach me to learn gratitude each day, deep compassion, more patient, humble and better human been; take good care of yourself and thank you for sharing your struggle journey with us - namaste!