MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Good morning everyone! In reading all of the posts, I see that we are all on our own combo of meds, vitamins, etc. which I've learned is very common for this disease. I have never taken so many pills in my life though and am starting to think maybe I am taking too many? Below is all of the meds my doc currently has me on plus vitamins and such that she has recommended. She just ordered Benlysta for me but we have to wait till insurance approves it. I'm still new to this disease. Is this level of meds and such normal?
Plaquenil 200mg
Celebrex 400 mg
Prednisone 20mg
Vitamin D 2000iu
Zinc 50mg
Curcumin 1000mg
Multi vitamin
Between this and my allergy meds, I feel like I'm taking pills all the time. Is this normal for everyone else?
Billie
Plaquenil 200mg
Celebrex 400 mg
Prednisone 20mg
Vitamin D 2000iu
Zinc 50mg
Curcumin 1000mg
Multi vitamin
Between this and my allergy meds, I feel like I'm taking pills all the time. Is this normal for everyone else?
Billie
Mary Ann
Cellcept 4000mg
Prednisone 10mg
Ritucksin
Vit D 2000
Garlic
Coumadin 5mg
and some others for pain and what not
They have changed me to these
Methotextrate
Humira
follic acid
and the same blood thinners and pain meds and garlic
They tryed the first set of drugs for about a year. My sed rate was around 60 to 80 still so they changed
Plaquenil 400 mg
Imuran 150 mg
Prednisone 10 mg (tapering off soon)
Trazodone 75 mg
Sertraline 50 mg
levothyroxine 25 mcg
Vit D 2000 mg
B Complex
Calcium-Magnesium-Zinc
Omega 3s
Glutamine 6-10 grams
probiotics (water kefir)
I also have celiac and Hashimoto's thyroiditis. Depression/anxiety are symptoms of celiac, MCTD, and thyroiditis, so I'm being treated for all of these things.
gabapentin
flexeril
tramadol
immuran
celcept
vitamin b12
vitamin d
fish oil
ibprofen
folic acid
multi vitamin
on just about every medication "against SLE flare-ups",
but every time it lasted only for a very short time
because sooner or laterthe side-effects of each medication
took over and made my life even more miserable
than the flare-ups could.
With every flare-up I "only" ended u[p in hospital whereas
with the medication taken whilst being "treated" against flare-ups
my life was practically put at risk every time because of my allergies/drug-intpolerance to all these medications.
I now only take a very small dose (5 mg) of
an anti-hypertensive medication every day and nothing else because there is nothing else left for me to take anyway
for flare-ups etc because of my drug-intolerance
and multiple allergies.
Strangely enough I feel much better and I do much better
than I ever did before whilst I was on all these different medications.
Having stopped all these medications I am not even in-and-out of hopsital anymore either.
This has had a very good effect on my general health because of my photosensitivity which was never ever being taken into account whilst I was in hospital and my photosensitivity made my life hell
every time I was expoised to these ultraviolet lights in hospital.
Being exposed to artificial ultraviolet lights in hopspitals made my blood pressure go sky high,every time, my body was swelling all
over, my muscles were jurting so much and I was completely unable to move...)
Phoptosensitivity is unfortunately not medically accepted
as a "side-effect" of SLE/MCTD in UK hospitals by UK NHS doctors, in fact photosensitivity does not exist in the UK
with NHS doctors at all.
Photosensitivity among SLE/MCTD patients only "starts to exist"
as a medical fact if a UK SLE/MCTD-patient sees a private doctor.
Very sad but true.
Kristina.