MCTD Support Group

Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...

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Livin-Right 11/05/2011

My D is pretty low, And I'm pretty sure the sun isn't where I'm going to go to get me some. So I've Googled. I don't like taking all these pills but realize It's happening whether I like it or not. I'm from Louisiana and we have fish. Not Super special cod or fancy named fish. Just catfish and bass, so I'm not really into fishy taste and smell. I saw mushrooms were good, I saw sardines but nothing that I really want to eat. Then I saw cod liver oil. Taking it like a tsp.
My hope is that you've all tried something and had good results. Plus noone has posted today and I was lonely lol. maybe my D has me depressed. jk.
Tuna has a little but they didn't want canned tuna. all kinds of info but nothing Other than the cod liver oil looked like the best bang for the buck.
p.s. If it is something I would need to cook could you please give me a recipe and cooking instructions, We fry everything.
TY all

Livin-Right 11/05/2011

why does it happen that every time I post and type Peace love or harmony does it highlight it green. Can we cash in our green words for a prize and do we have words that turn red and take points away...lol

MToennis 11/05/2011

I just take the pills and get a little sun when I can. I have problems with very much sun but a few min here or there is something I can do.
Mary Ann

klwfroggy 11/06/2011

I have taken some high does D and they make you feel like a million bucks for a day or two. I take fish oil when I remember, haven't really noticed a difference, but that might be because I don't remember to take it regularly.
I have no idea why it chooses to highlight certain words. I wish it was like a game with prizes...we should get something for having this disease, right?
-Kate

Livin-Right 11/06/2011

My Internal got me off the reg fish oil and started my on Kril oil, its supposedly better than the reg fish oil as far as more omega 3 but is a small pill instead of 4 large and it doesn't have a taste or cause the after effects

Livin-Right 11/06/2011

The main reason I was asking about the D was i'm pretty moody. im taking 40mg lexapro and 1mg klonapin a day and it doesn't seem to be helping. And anything I can do to keep from taking more prescribed meds and paying big dollars for something that could be cheaper and maybe work as well. :0) I don't want to be depressed another Christmas. My kids are getting older and I use to be super holiday fun. And really want to try and do that for them this year.

Havana 11/06/2011

The green words are links you can click on for info about that word.

deleted_user 11/09/2011

My understanding is that Vit D is best absorbed with Magnesium. In fact, I've heard they really are necessary to eachother. The Vit D won't be absorbed fully w/o it. I'm not a doc, but I've done quite a bit of research on the matter. You can take Magenesium in pill or powder form. You can also absorb it thru the skin in Epsom salt baths. Good luck. Ask a nutritionist about this. My regular docs seem to always be quite clueless on actual nutrition and diet, but masters on meds.

deleted_user 11/20/2011

You can get Vitamin D very inexpensively at vitacost.com. I take 5000 IU daily, which may change now that I am on Dovonex for my morphea and dishidrotic eczema.

I am on Sulfasalazine and have to avoid the sun. I'm of Irish/Swedish heritage anyway, so I am practically transparent as it is.

I don't consume a lot of dairy and the capsules are the easiest way to supplement.
Make sure that it is D3 (cholecalciferol), which is the kind your body makes naturally.

I was on 2000 IU daily, but my levels were borderline low (in 2009), I've been on the 5000 dose ever since.

deleted_user 11/20/2011

Ska is right, you need Magnesium, Calcium and Vitamin D together to get the true effects of all of them.
I take Vistacost's MagUltra, it says it has 1300 mg of Mg in it, but it is a blend and truly only has 300 mg of bioavailable Mag. I used to used Magnesium Oxide, but if I ended up getting more than 400 mg in me daily, via diet, etc. I got diarrhea. My neuro recc the Mag Ultra and it is inexpensive.

I was just reading about the Krill Oil and am going to look into it.

Livin-Right 11/20/2011

tyvm , Im going to have to check more into this

deleted_user 11/22/2011

No problem

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