MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
My left side turns purple for whatever reason , also another thing to watch for is positive Lupus anticoagulant antibody I was found to have this after ending up with multiple bilateral pulmonary embolisms so now it's blood thinners for life.
I was dx 4 yrs ago and it has been miserable! I ended up having to quit my career due to brain fog etc. (healthcare admin)
Thankfully I have a very supportive husband who has watched me suffer and understands what this is doing to me. I just really want my life back.
Has anyone moved to different climate aka Florida etc and felt better? We are actually thinking about as when I am there after about 3-4 days I start to feel better
Mary Ann
Mary Ann
I see your comments every where, you seem to have a better understand of MCTD and how to approach it (mentally) I would love to pick your brain a bit!
Tristan
Have you gotten any more answers?