MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
I hope the trip down there does help you and save a boy or two for us...I think we all could use some good service here you know lol just a joke.
OK I see we all made it through to this new year 2012 wow time does go fast when were not watching or having fun or not....just another year to me....got to start a new folder for this years records of medical things...that way I have them that is if I do it...nice to think about I always wait until I can't find the records then wish I follow thru....LOL I promise I will this year.
OH I started walking....yup again........I got my walker with it's basket really its over the basket see I can put my oxygen tank in it and push this thing....it has a built in seat so I can stop when or where I want too.....it is great for me.
I got some running shoes or walking shoes whatever they are so I put them on and now I am boncing....along the way not really.
I found out that my cell phone (where have i been) turns into a radio too....so I borrow my hubby's ear phones and which are too big for my head but they work. And walk and listening to music...yup I am way out of time here.
I wish for all the toys all the kids got I mean the radio type thing...so I can listen to music...for some unknown to me reason I love to listen to music....of course we don't all we do ?
OK I over did it....that's me for sure..I been walking as far as I felt I could everyday morning and seeing others out there is nice...except i am left in the dust of course....even the mom's pushing their babies go faster then I can walk....lol too funny.
I see more things laying on the sidewalks and dogs etc...you get it
I can do it......that is the point...I can still walk.
Big deal you know being able to walk..........
I feel my legs crying stop stop and wanting to let go sort of and m ankes now doing it switching thing which makes me fall.....but no way I keep on going
they put duck out in our water falls and ponds in front of our development where I live....funny I bought some bread and they had taken the ducks away....we live in a bunch of housing tracks all put up here on side of a hill area by several big time builders....
out in the main Road there is this water that runs most of the length of the development.
They build what we call fake bridges that look real enough...and walk ways all over the places......so yeah you can walk for a long ways everywhich way out here....and might see a wild aminal crossing the road....cayato...mis spell
Well I miss the ducks.
I guess
I had a quite and quick xmas and family came and left and we sat here....to broke I spent it all on grandkids we have 15... yup we do
5 kids and our washer broke so my husband is fixing it him self....
so what is next ?
I going to see my family doctor today.
My Nuro doctor drop me said he can't help me any more...told me to go to barrows yes that is today I yell at my family doctor about a referal.
and my lung doctor yes he is still telling me what to do and how to do it....so I have two doctors telling me to go to barrows nuro hospital.
OK I got the message.............today I see if I can push my family doctor or stop going to him.
Yup I am scared.
My legs are now up to my hips in pain...just like you need to know this right.
And my left hand is acting up ...........the ER I went to the other day is sending me to a hand spiecalish...yup go next week...probably nothing to do..........
I see the RA doctor next month....yes thought about calling an seeing if I can get in sooner.........I guess i am afaird
well lets see my husband compalns about his pain all day long.......I feel guilty having pain.......and so on so forth.
I am bad.......I love all the stuff I am not suppose to eat and eat..........
but it is for me to find the strenght to not eat it....I try.
I am watching and waiting for the other shoe to drop....
I find my headaches all by myself fig out to check my blood pressure guess yes it is high with my headaches..... I will mention this to my family doctor will see
I am on medicade still and they have decided not to pay for some of my pills....I am not taking a few right now.....they are expenisve...so anotehr memtion to my doctor...
Oh I didn't pass the memory test my nuro doctor did of course government won't pay for the pills for that.
I did have a dizzy tests done in his office (nuro doctor's) he just told me monday that it isn't my middle ear causing it.
I don't know why i get dizzy.....
Well I am find outer wize....as we canbe.
I gave my gabapinton pills to my husband to help his pain...he says it help but he is still popping in hydorcondone for pain...not as much.
Oh his doctor told him he could take my pills...nice docor.
right
Well that is all I can rememember
have a good year....everybody
OH when are you coming back from Brillzil (mis spell)?
just asking wondering minds do that.
happy new year everyone
ruthiebee