Hi all. Glad to have found this forum, alternating between trying to pretend I don't have MCTD and bawling my eyes out about it. I am newly diagnosed, waiting on an appointment with a rheumatologist. I'm 42 years old, no previous health problems whatsoever. Healthy. No medicaions, active, work full time as a nurse and always on the go. I went on vacation and did a pretty vigorous bike ride. Next morning, noticed my knees were sore. That night, even more sore...as in difficulty walking. Progressed from severe knee pain to what I thought was my Achilles heel flaring up...saw a doctor who was concerned I had torn it. Had an MRI, positive for muscle tear. However by this point, my other ankle flared up also. Could not walk, ankles huge, can't go up or down stairs. Knees still stiff, creaky, sore. Finally break down and take medrol pack the orthopedist had prescribed. Miracle drugs. Feel completely normal by the finish of the pack. Two days later, steroids wore off, almost bedridden again. Go to see my family doctor, had some labwork done, and here we are at this diagnosis with positive ANA, RNP antibodies, elevated sed rate, elevated crp and having to take 10mg prednisone just to be able to function. Very scared about the future, my future ability to work, and wanting to go crawl in a hole. I need some encouragement, husband doesnt understand and my parents just look at me with such pity I can't stand it. I hope there is life after this diagnosis. Not sure I can do this.
It seems really hard to navigate around and things are just a bit different from the last time I was here.Beth
Hello everyone, I am a 23 year old woman and I have been recently diagnosed with MCTD. I began experiencing horrible gastrointestinal pain in August 2016 and after tests and a colonoscopy, I was diagnosed with pancolitis. I had to revamp my diet, removing dairy, caffeine, and alcohol. I have been a vegetarian my whole life so I was happy to hear about needing to stay away from meat (which was...