Hi all. Glad to have found this forum, alternating between trying to pretend I don't have MCTD and bawling my eyes out about it. I am newly diagnosed, waiting on an appointment with a rheumatologist. I'm 42 years old, no previous health problems whatsoever. Healthy. No medicaions, active, work full time as a nurse and always on the go. I went on vacation and did a pretty vigorous bike ride. Next morning, noticed my knees were sore. That night, even more sore...as in difficulty walking. Progressed from severe knee pain to what I thought was my Achilles heel flaring up...saw a doctor who was concerned I had torn it. Had an MRI, positive for muscle tear. However by this point, my other ankle flared up also. Could not walk, ankles huge, can't go up or down stairs. Knees still stiff, creaky, sore. Finally break down and take medrol pack the orthopedist had prescribed. Miracle drugs. Feel completely normal by the finish of the pack. Two days later, steroids wore off, almost bedridden again. Go to see my family doctor, had some labwork done, and here we are at this diagnosis with positive ANA, RNP antibodies, elevated sed rate, elevated crp and having to take 10mg prednisone just to be able to function. Very scared about the future, my future ability to work, and wanting to go crawl in a hole. I need some encouragement, husband doesnt understand and my parents just look at me with such pity I can't stand it. I hope there is life after this diagnosis. Not sure I can do this.
Today I went to see the Family Dr and the Rheumatologist. The family Dr took 3 tubes of blood to check my blood count, a metabolic profile, TSH, and A1C. My BP was 140/98, so he was concerned and talked about upping my meds. After some errands and a meal, I went to the rheumy who was concerned that my BP was too low. It was 103/70. You see, my meds had finally kicked it! Anyway, he took my hair...
Scoring a 71 with normal being less than 20 units.71 is a moderate to strong positive, 80 is strong.Tricky test to read, will explain later.