MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Thought I would start a new thread that we havent addressed in a few years.
How long have you been a member, how long have you had symptoms, how long have you been diagnosed, and where do you live!?!
To start:
I have been a member about 5-6 years.
Have had symptoms, off and on, since I was 2 years old! (luckily, long remissions!) I am 57 now! (So, see, it wasnt a death sentence!)
I was diagnosed 6 years ago or so.
I live in Eastern Tennessee, USA, between the Cumberland and Smokey Mountains. That doesnt keep it cool. Was 97 degrees F yesterday!
OK- your turn!
Mary ANn
How long have you been a member, how long have you had symptoms, how long have you been diagnosed, and where do you live!?!
To start:
I have been a member about 5-6 years.
Have had symptoms, off and on, since I was 2 years old! (luckily, long remissions!) I am 57 now! (So, see, it wasnt a death sentence!)
I was diagnosed 6 years ago or so.
I live in Eastern Tennessee, USA, between the Cumberland and Smokey Mountains. That doesnt keep it cool. Was 97 degrees F yesterday!
OK- your turn!
Mary ANn
Had no real complictaions until I was 22and got fluid on lungs, then severe myositis.
Tried every drug going, found Rituximab and Mycophenolate to keep my symptoms under control. Currently it's all under control and praying it stays that way...
I'm from the UK. Cold and wet most of the time which doesn't help!!!
Mary Ann
What a lovely idea....
Join DS aug 09
Was diagnosed a about four months prior to that. Symptoms for a few years if honest but no one put everything together as you very really see the same doctor twice.
Live in England a about 30 miles away from Stonehenge.
Hug to you all
I've had symptoms since about 7th grade. I'm a senior in high school now.
I was diagnosis about three months ago, but I was also diagnosis with APS last fall after a two week hospitalization with a DVT and PEs.
I love in Illinois, just north of Chicago.
Mary Ann
I live near Santa Cruz, CA. Fortunately sunlight doesn't bother me; I get lots of vitamin D.