Oh yes! It has changed a lot! How in the world do you find old posts? I really am having a time. I sent a couple of posts to the powers that be only to find that they are changing the site! Sheesh. Plus someone posted something in Arabic with a link. I asked them to check it out. Dont see it anymore but they wrote me back and asked which site it was on! It is really screwy!
Mary Ann

Nope, the arabic is still there.
Mary Ann

I think we need to find and maintain another blog.

The best case scenario is that no one cares about us.

The worst is that no one really wants us, or any group of patients, to compare notes and figure out the best way to take care of ourselves without producing a passive income stream for pharmaceutical and health insurance companies.

I own three different domain names, I should talk to my tech guy and see what he can do.

This is really bad. Now we have a lot of new members who post only two to 12 times and then disappear. But when this site was simpler and functioned properly, we were retaining more like 20-30% of our members.

Who knows how many new members-- or long-timers-- just can't figure out how to navigate this site or otherwise grow impatient with it?

Good project for the new year!

--MJJ

Matt, this site really sucks! It is not user friendly for sure. If you can come up with an answer, I am on board!
Mary Ann

it seems like everytime I come on the site something is different. I was just getting back into the swing of things and they changed it again

I agree. I was always on the site reading posts and getting good info. No I cant find anything and do not like it.

I hadn't been on in a while. Found it quicker and easier on several FB groups for People with MCTD.

Privacy is a bigger issue on facebook. That is why I dont like it.