MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
As for the palpitations, sometimes those heart monitors dont show anything if your problem doesnt occur while you have it on! At one time, I read those things, back when they were 24 hours and read manually, before computers! LOL! I had a woman that had been passing out for months and had been hospitalized for it and had worn numerous heart monitors. One day my tech was putting one on her and she passed out. Luckily, the tech had turned it on before putting it on her. The woman woke up, I grabbed the monitor and checked it. Her heart had STOPPED for about 45 seconds. I got her admitted pronto and she had a pacemaker put in.
Keep talking to your Dr about this. And good luck.
Mary Ann
I called my Dr and she gave me some steroids to start. I was trying real hard not to take them but had to start the first dose today the pain and sob just kept getting worse. Anyone else have this kind of issue?
Mary Ann
Mary Ann
Realizing we are not in control is a humbling experience.
Mary Ann
Since then I still having chest pains.
What I learn is when the doctor can't find a reason for like with me my chest pains they tend to think you need something for your actions...sorry can't spell the word I want to put here.
But in truth is they are real to me.
I won't bore you with several years of testing and not finding reasons.
I pray all the time to God asking for him to help me.
I think he has already.
I fired my last cardo because of the last surgery I had at the end of may. Gallbadder the surgent told us he just made it in before it could bursed. I believe God help me out then too.
I don't care any more what is causing me to have chest pains...I give up...and I put myself into Gods hands.
I did go last week and saw a new cardo...he was horrible. All the things he told us (my husband and me) was so crazy....
I just wanted out so I play along made the next apt that was last friday. Monday I cancel....and was polite.
I just needed a cardo so if I need any more surgiers I have one....they wouldn't clear me for the gallbadder surgery without a clearnest from several of my doctors including my heart doctor.
Now I guess even if I don't want one have to find another one at least one that is normal....smile
too many crazy doctors....I'm like some of you I'm tired of doctors.
Yes still having my chest pain...during the labor day weekend I mostly stay in bed because I was having some then. I kept an eye on my self check my blood pressure and my oxygen level.
I am ok.............I have my ntiro....I told my husband don't call 911 unless I pass out.
I think our bodies can't always show the problems...I just keep praying and hoping that it is all in my mind...
Thank you for reading....
I do hope you find releaf in your chest pains....
hugs
ruth
sooooooooooo frustrating!!!!
I've also had near-syncope spells before, but they didn't seem to be connected to my pleurisy so I'm not sure what's up with that...
I get palpitations occasionally, and when I change my prednisone dose I get more - at higher doses (like 40mg per day) I get tons of palpitations, it's very unsettling.
I've also had normal EKGs, worn a heart monitor, had cerebral angiography, all were completely normal.
Kathryn