The longer you're on the prednisone, the worse it will get. Sorry, not probably what you wanted to hear...but, the cold hard truth.

You're going to have periods of adjustment. Unfortunately, that's just part of it. I have never been of the belief that this thing was meant to be pain free, although, it pretty much has been for me. I usually am a little painful in the mornings. Especially my darn feet. But, once I get up and move around..that pretty much resolves.

I'm not familiar with your case...but, based on the amount of prednisone you're on, you're pretty newly diagnosed. It's going to be up and down. You'll have good days and bad days. Enjoy the good days and stay positive on the bad ones. DO NOT DWELL ON THE BAD ONES!!!!!!!!!! Take up a sedentary hobby...I did cross stitch to keep me occupied when I didn't have the energy or strength to get out and about. I did walk religiously though. That was very helpful.

Keep your chin up. It's not an exact science and you'll experience every emotion and feeling known to man.

Be well.

Has your doc mentioned plaquenil? That was one of the first ones after prednisone that I was put on......it takes up to four months to fully take effect but it has made a huge difference in my life. If I didn't have the lung problems I would be almost unaffected by this illness. I only have a few aches and pains....very mild

I am not on any pain meds, except the occasional celebrex.

I'm always a little stiff and sore in the mornings but it usually works itself out fairly quick

Good luck
Beth

He is using cellcept (antirejection) to get me off of pred, but hasent lowered the pred dose yet. It feels like my knees are twisted into a dirsection i cant straighten,ankles and hip.swollen sweating in pain. Tried advil,hot tub for 2 hours, up down I cant fet any relief , even breathed through the nose, called doc finally. idk Y. this is as bad as last week when he changed my pred dose

I have been on plaquenil along with imuran and then they tried me on cyclophosphimide and then rituxan.......I have never been off plaquenil.

Most of the people that have been dx with an autoimmune are usually put on pred and plaquenilto start.

Just something to ask your rheumy.

Beth

He added something after he saw my legs , Tramadol 50mg
non narcotic pain, we will see. Breath in the nose out the mouth, its getting dark outside maybe i will sleep

be careful with the tramadol. common misconception that it's non narcotic. It's actually an opiate deriviative that's not classified as a narcotic. IT CAN BE HABIT FORMING. Lots of doctors won't tell you that. I headed up a study with the drug company that makes it when they were getting ready to market Ultracet.

As an office nurse in ortho...it was my best shot at weaning off folks from the big dogs.

N

tyvm, I'm normally not in for any pain meds. The acute symptoms caused me to react and his answer was this a stronger drug. I asked for this med due to its semi reputation, and because of the frequent blood clots I'm afraid to not feel some pain, but tyvm

I have an addictive personality so Im always weary of pain meds