MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Hello I joined this site last July when I was first diagnosed. I usually just read what all of you share and find myself experiencing much of the same things. I find I have come a long way since last July Thank God!! Although like many of you wish I could say I was 100% again yet know that will never happen .I shoot for just being able to function with only alittle pain. I take methotrexate and can't seem to get off the prednisone. The thing that I just cant seem to understand is my hands swelling and itching. My face also has a tightness or fluid filled feeling. My rhemmmy doesnt seem to think its the Dz but doesnt everything happen becasuse of the dz?? I live in Ohio and I sure can tell the difference since it's gotten warm. Thanks for listening. Michelle
But that hasn't happened yet. And I agree with lady that it seems, at least, like this drug is the most toxic of the bunch.
So is Catalyzt a fan of Methotrexate? Uh, that would be no.
I can't spell sorry....truely....so you'll have to either forgive me or don't read.
Well........I am older 61, and on m off for years having troubles with falling down at first. I have a ton of list of things.......I don't look for them they are just coming to me, it seems lately a lot.
I kind of went thru my life enoring my pain. HOW bu working thru it.....I had to just do it raising 5 kids. etc.
I work on n off........well why here somone in another area said maybe I have this?
then this other person said why am I looking? As if it was wrong of me to fig out what is wrong with me? kind of hard.
Well..........another nice person said look here so I have without posting. Just reading.
then I said thank you went on then this another person mostly said same thing to me why do I want to find out what is wrong......they make mistakes anyway......she went on to tell me she for years was told she had this one dease and after many years she doesn't.....I would of thought Great!!
Oh well that them not me.................I guess it more then just wanting to know...I have several things wrong.......I think there must be a link with them. It could be what I eat, or drink, or my life style something?
Why is it wrong to try to fig it out?
I have a regular doctor GP...........he is what I call a store front doctor....I guess they are ok for regular doctoring.........he didn't even check me for 15 years if I had High Colestrol or not....and then I had a heart problem...................first thing they ask when your in the ER what is your colestrol leavel? I had no idea.....never been ck.
so my moral is I could change I try to change once......but I live way out in no where land.........and it is far to get to doctors. I have what I have.
I don't think having one thing makes it all together all things......
But I have to do this on my own because I have no one not even my doctor would.
So there I am.............
I have Ortho type Arthristis........yes in my hands, fingers, wrists, shoulder, hips, knees, ankles and yes they swell up and hurt.// I have copd never smoke....I been on n off predinson and today was my last pill for my Plrusery I just happen to get last week.
My legs are swollen up and my feet n ankel........my doctor gave me two days ago pills to take the water out of me.......and gave me another pill for possum....(sorry miss spellings)
I have a stint in my LAD of my heart.........and I have blockages.
I get kidney stones or last year I did/ As long as I remember I get UTI's all the time......just had one last weekend.....
I had upper n lower gi done recently.........I had pre cancer they took them out.
I had skin cancer two years ago they took that out.
I have now rashes for the last two months around both knees up n down from them. I have them around each elbow. I have a little red rash on my chest.
And only rash on my face is my forhead.
I do have fibromyalgia was told by a doctor at cigne health care back in 1997. But today my store front doctor doesn't think I have that at all.
He thinks all my illnesses are from my anxiety......and laughs at me.
a little when he needs another tests because I fell again and got hurt........oh yes I been falling down since I was in high school....
just try to say it's just me!!!!!
Yes I have pain........in my lower back....was born with Sossises (mis spell) and bluging disk L5 S1//
I had epadurals two months ago in my back and a shot in my hip.
it help some.........but still fell down twice since.
I have trouble but I just manage........I have good days and bad.
Then when they are good it is like I have nothing wrong? weird
Well............I probably forgotten something........I do write books sorry.
I guess I was just wondering why I have these things but I think I shouldn't look for a Zebra....I might find a horse right?
Well The first Rhumy doctor said I had one signal for ANA....she doesn't work any more.......the doctor who took over for her said NO.........and I am mild Ortho arthirists.......
Yes I guess this is when you look for a new doctor.........but I guess I am giving up. I just wait and die I am too tired and depressed any more.
I feel like no one believes me.
sorry
ruthie
so yes a mix box of stuff............who knows ??? I will keep praying to God...
Like they say God only gives you what you can handle.
Ruthie
Mary Ann
Yes I am depressed right now............so it's ok to come here ??
I just don't know anything maybe you 'll all help me learn by me reading your posts? who knows
yes my GP is testing me for Lupus.......probably don't have it?
I think I do have type of automun dease...even my husband thinks so?
I won't hold my breath.....
like my lung doctor told me today.......he also thinks so...by the way....if it turns our I do he is ready to up my med's????
O m goodness I have to be put back on Prednisone he said today.....he didn't like how the ER just drop me off ///
Heavy doze in IV then 5 days of 20mg so he just put me back on to taper off.
And another pill to take along.
Well i am all pill up............I guess lets see.
thank you your are a kind person........thank you
I was in tears but you made my day thank you.
HUGS
Ruthie
Mary Ann
I discoverd I did so stupid of me....
I hope Michelle you will feel better and they also will fnd out what is causing your inching?
My hands swell up too, and my feet and legs........on a pill for that too.
I hope you feel better soon.....God Bless you