MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
It is getting too quiet on here. Lets have a roll call! Every body tell us what you have been doing and how you are!
As for me, I am again trying to retire! LOL!
My oldest twin graduated from college and is getting some nibbles in the job department which means I may soon get her off my payroll! Meanwhile, the youngest twin got a job cleaning offices, so now she has some cash of her own!
I am putzing along. After 3 months of back pain, I am at baseline again. That means the pain is manageable! Now if I can just keep from doing anything stupid!
My cardiologist ordered a 48 hour heart monitor that I will do next week. He really wants me to do a cardiac ablation. I am not so hot to do that. But he says he can decrease my meds if I have it. The beta blockers are wearing me out. They make you so tired on top of the MCTD. Had a flare last week but it was only 1 day.
Hope you are all doing well.
Mary Ann
As for me, I am again trying to retire! LOL!
My oldest twin graduated from college and is getting some nibbles in the job department which means I may soon get her off my payroll! Meanwhile, the youngest twin got a job cleaning offices, so now she has some cash of her own!
I am putzing along. After 3 months of back pain, I am at baseline again. That means the pain is manageable! Now if I can just keep from doing anything stupid!
My cardiologist ordered a 48 hour heart monitor that I will do next week. He really wants me to do a cardiac ablation. I am not so hot to do that. But he says he can decrease my meds if I have it. The beta blockers are wearing me out. They make you so tired on top of the MCTD. Had a flare last week but it was only 1 day.
Hope you are all doing well.
Mary Ann
Started exercising , went kayaking ( haven't done in 2 yrs.,
Riding bikes... Lost 8 lbs on my own Feel Great
If The Lord will just keep it going since my co-working Nutse quit
I'm running the clinic alone so praying the stress doesn't get to me
I am not currently on ANY meds (for MCTD at least) and honestly don't see any major differences. I'm hanging in there, but my mood changes as often as my underwear! (and that's like once a week...kidding). Anyway, hope others are doing more consistently better than I am.... Nancy