Lyme Disease Support Group

Lyme disease is the most common vector-borne disease in the Northern Hemisphere. It is now one of the fastest growing infectious diseases in the U.S. Lyme disease is caused by infection with the Borrelia burgdorferi bacteria, and is primarily transmitted to humans as well as dogs, horses and other domesticated animals by the bite of infected ticks.

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slrow 10/14/2009

Hi,
I was just wondering does the cold weather bothers anyone else? I mean I cannot stand really hot and humid weather either . I know that even rainy and damp weather I feel yucky weather it is hot or cold but in he winter I gett really stiff. It is harder to get moving in the mornings and my feet and hands stay frozen no matter if I keep them covered or not.
I live in MD. and it is just starting to get cold. I had to sleep the other night with my little heater on in my room because I just could not get warm. My daughter is amazed because I am never ever cold. I am the one that always has the air on in my truck because I stay so hot.
But for some reason it seems like this year the cold is going to bother me more than it usually does. I seem to always end up on the couch with a blanket becasue I am cold. My house is probably the average tempature of around 72 degrees. I also seem to have more of a sore throat than normal also. Like right now my hands are foze and my shoulders just have a dull aching in the joints.
i take fish oil and magnesium which has really helped with my muscle jerking. that only happens now when I am dozing off to sleep but I just cannot get warm and that is not like me.

deleted_user 10/14/2009

are you sure you aren't getting sick? I got a sore throat and was chilled to the bone last week and ended up getting sick. But under normal circumstances, my hands and feet are always like ice cubes. It gets almost painful at times. An electric blanket has helped me alot in my room, I can turn it on a half hour before bed and get in to a nice warm bed.
If you think you might be getting sick - my LLMD told me to take 50,000IU of Vitamin D 3 to get over being sick, or prevent it, quickly. Not regular D which he said does nothing but D3. I read and apparently that is the kind of D our bodies make when in the sun. Normally I take 20000 IU's since I am so D deficient. Hope that helps a bit.

slrow 10/14/2009

Thanks, my throat seems like it comes in cycles. Like it will hurt for 2-3 weeks and then stop and then go away for a couple of months and then start up again. I have been wondering about Vit D. Just this evening i was telling my husband that we need to start taking it. Thanks for the tip about it being D3. I would not have known to take that kind.I think I will go to the Vitamin store and go ahead and pick some up.
I tried an electric blanket last year and that was a bother to my husband so I bought an osolating(spell?) heater and put it on my side of the bed and it blows just enough on me to keep me warm.
I also commented to my hubby that we all need to get our levels of Vit Dchecked because they say most people are low.
Thanks again for the info it will be well used :)

deleted_user 10/15/2009

I wish vitamin D was all that would help, yet with this Lyme, I am always freezing to death if it even tries to get less than 78! I'll try it again though, if it seems to help, keep forgetting things more and more. I do remember that men are just like radiators! They never get cold. Could be a survival mechanism built right into them! LOL! They always talk about wanting to live in Alaska here in WI, while I'm thinking those eskimos got a screw loose somewhere.....! I have a really nice fluffy type robe with fluffy slippers, and sleep with them on! It really works, but there are nights I also sweat for no good reason, and then my chest is soaked apon waking, so try the single elec blanky first, just on your side, so hubby is safe in his own world! Men seem not to like the cuddling because of this heated thing I've found out.......

deleted_user 10/15/2009

I have been like that for a while now. I am always complaining about me being cold. Almost like its deep down inside. Every afternoon I have been making a cup of tea, it seems to be the only thing that warms me up lately. My hands and feet and knees are affected more than anything.

deleted_user 10/15/2009

Our electric blanket has 2 controls, and if I keep my side on low, he doesn't notice. Thank God! I also sleep in tight fitting leggings and shirt, if I don't have things close to my body I get cold. And the chilled to the bone? Oh yes. Sometimes it will be 90 out (really) yet I feel frozen, not on the surface, but inside, in my bones, and I just cannot get warm. And that does seem to come in cycles. Actually I have not had that for awhile. I hope you feel better, and find a way to keep warm!

deleted_user 10/15/2009

And here's another thing that I thought was unique to me! I guess I'm not as special as I thought I was, LOL. I, too, get so cold that I can't get warm. I can take a hot shower and still be cold. I'm the sexiest thing around our house with my footies on, and when I get really cold, sweats. Ohh, baby :) We have a waterbed that is 88 degrees all year round. My husband uses a sheet and a blanket, and I have two blankets plus the comforter on the bed, and he folds them back onto me so I have the equivalent of about 5 layers on my side! And then once in a while, just when I'm getting comfortably warm, some little heater in my body goes ON and I'm taking everything off, including my pjs. Frustrating. So now we have solved a mystery -- it's the Lyme :)

deleted_user 10/15/2009

unless it's menopause. LOL

slrow 10/15/2009

WOW! Thanks guys. I am glad to see that I am not the only icicle in the bunch ! lol. Guess it is just one of those weird symptoms we have.

deleted_user 10/16/2009

Okay, me too with the coldness. I cannot seem to get warm some days. I am yelling at my husband for not having our kids dressed warm enough and he's walking around the house in shorts and a tshirt. I was always told this was due to Lupus/Raynaud's. Maybe not after all!

And we're having nothing but cold rain. It makes my muscle and joint pain so much worse, and my headaches. And nothing can make my hands warm up.They get so cold they hurt. I make the tea too. In the morning and afternoon. Of course, following doctors orders, I drink decaf, lol. But it's warm all the same. The other day I even made hot chocolate.

slrow 10/18/2009

My Aunt was diagosed with Raynauds and I still think she has Lymes. She has to wear gloves when she gets meat from the freezer that is how sensative her hands are. Now that I hear of someone else that has it but has Lyme also. I have begged her and she just gets worse. Now they have her talked into back surgery to relieve leg and hip pain. Both are the sam I suffer with. i am so scared for her because she refuses to listen and each time I see her she is worse for the wear.

deleted_user 10/18/2009

I have a friend similar to your aunt. She has a heart problem, and now has been told she has MS. Exactly like me. I have tried to encourage her to have a lyme test. Before she went in last week for her spinal tap, I encouraged her again. Now she won't talk to me! She believes the drs that lyme is no big deal, and isn't willing to look outside the box. So sad!

deleted_user 10/19/2009

yes! I'm always cold - yet warm in some body spots -- my lyme healer says that can be the schetes jamming up in the capillariess - causing blood flow to be uneven --
hugs, CJ

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