have you tried other types of treatment rather than antibiotics? Like herbal medicines?

I'm allergic to cats claw and a couple other herbs, my doc has me on the byron white formula a-bart right now.

have you tried iv antiboitcs that can sometimes be the last resort when all else fails

Yes I've been on IV, I've had 3 PICC lines over the years and I've also had over 50 injections of bicillin.

well as always I've proven I don't know what I'm talking about, sorry all that has bombed I really can't think of any usefually sugestions

Before I quit abx i used some ivermectin, cheap horse wormer , did this a couple of times (spread apart) then started abx up again for I don't know how long 2 months?

I now take 6000 mg of C and a bunch of magnesium and zinc. I'm doing okay I haven't had abx for a long long time. I do have times when I don't feel well and it feels like lyme. I just found out that with late lyme every 5 weeks or so one might get some symptoms of a herx but in a much lesser degree than those in the beginning death herxes!

I wish you luck and pray you do what is right for you. I am sooooo
happy that I am as good as I am, there was no place to go but up!! ignore the wormer part it just seemed right for me but probably is not right for everybody. The c and mag are great!

I appreciate the help freedom, like I said after 12 years I've been through a lot. Sorry if I sounded snappish, I just keep wishing, hoping that something would work. I appreciate the suggestions.

I've been on 3,000 mg of Vit C, 4000 IU of D, plus magnesium for a while, it helps some but not a lot. I've resorted to vicodin and carisoprodol to control the aches and pains, tylenol, ultram, and skelaxin dont do much anymore.

I am in the same boat. this is my 10ar on meds and I ended up in the hosp. for 3 days with stomach problems . I have cysts all over me but the good thing is since i stopped taking the abx for going on 2 months they are shrinlking which tells me that they are Lyme that are hiding from treatment and now are coming out since the meds have stopped but my doctor refuses to stop the abx. i dont get it!!! I would have had to get the most horrible disesase that is so hard to figure out and treat. I myself and fully relying on the only one i know that can do anything about it GOD ! Good luck to you.

The problem in my opinion with long term antibiotics is that not only does it tear away the lining of your stomach but so few doctors give patients the meds that are able to get at the dormant bacteria that have gone into hiding to avoid the antibiotics. I am taking NattoZyme or Nattokinase 100 mg that is good at getting rid of the biofilm that hides tha bacteria and along with my IV meds I am taking two perscriptions that target the dormant bacteria for one week intensively, these drugs are Pyrimethamine and Leucovorin along with the flagl (also called metronidazole). I am getting treated by the Jemsek Speciality Clinic and they have the newest and most effective treatments out there. He is in Under Our Skin, If you haven't seen it you should, and I have gotten so much better and just overall relief from first the oral antibiotics I was taking (which I had to stop due to a weak stomach) and now on IV I am getting a stronger herxing reaction than I ever have had. I honestly think that you should look into either trying to get into his clinic (I know it may be far away) or convincing your doc to put you on some of these meds for a short while along with treating with several other antibiotics at the same time. Best of luck and if you have any more questions feel free to message me.

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