Lyme Disease Support Group
Lyme disease is the most common vector-borne disease in the Northern Hemisphere. It is now one of the fastest growing infectious diseases in the U.S. Lyme disease is caused by infection with the Borrelia burgdorferi bacteria, and is primarily transmitted to humans as well as dogs, horses and other domesticated animals by the bite of infected ticks.
These were garnered from another site.
I hope everyone will get some inspiration from these stories. BTW---- I know most of these people and have known them for years---- if not in person then as eFriends.
[ Because I either know some of these people or have seen future posting by them----- some relapsed. Some never posted again, presumably because they were still ' cured' or in long term remission. I posted on that site that I was having a wonderful remission due to bicillin injections but when I stopped them I relapsed.]
1. "I am 100% today!!
2. "I feel better than I have in 25 years (I'm 54). I have no pain anywhere, and ALL my symptoms are gone except some inflammation inside my right eye (and that's 70% better than it was).
I'm not positive ALL the bacteria is killed, but we live with a myriad of bacteria and viruses anyway and everything's balanced by the immune system."
3. "I would say that I am in remmission. I have been symptom free and off of meds for over 4 months now.
My main drug of choice was Zithromax. It gave me my life back.
But I also tried other antibiotics. I am severly allergic to Doxy so that was not an option. I have always done orals and never iv.
I was infected in April of 1999 and misdiagnosed with a spider bite. I got treatment almost a year later. It took about 3 1/2 years to get better.
I dont know if I am totally cured (I dont know if any of us truly know this) but I do feel alright.
I'll be happy if it stays repressed the same way the other microbes in our bodys are."
4. "However, after 2 years of orals, 10 months of rocephin, and continued orals after that, XXXX is off her heart meds, hasnt had a stroke or seizure, and is remembering, driving, ice skating, skiing and riding her horse on nearly a daily basis. We have mostly good days lately, which is really nice."
5. "A year ago, I could not move my left arm due to synovitis and multiple joint pain that kept me awake at night. I often had to retreat to bed from fatigue. I could not walk up my stairs without extreme effort. I had the full gamut of neurological involvement, from insomnia and cognitive processing problems, memory loss, hallucinations, psychiatric symptoms looking like PTSD, agoraphobia, panic disorder, and depression, shooting pains, facial and ear pain, hypoglycemia at coma levels, and much more.
Today I can walk for miles, ski for hours, do household chores, perform my work, and everyone who sees me remarks on how well I look. I would say I am 85%. I still have neuropathy and have to take anti-seizure meds and Mobic for inflammation. I have occasional memory black holes and word-flipping errors when stressed. I am on my third round of orals, but no anti-depressants, and my mood is just fine, thank you.
I went undiagnosed for four years, and when I finally came to XXXX and saw my same symptoms being discussed by many similarly afflicted, I knew I had found the culprit. I went to a LLMD, told him about my big red rash that I once thought was insignificant. He took a history of my symptoms, ran tests or looked at recent ones done by others --Western Blot, PCR, MRI, SPECT Scan, echocardiogram-- all confirmed my diagnosis of neuroborreliosis.
I am not cured entirely, but the level of my progress allows me to resume nearly a normal life--doing what I enjoy. I am not quite up to driving speed, but someday soon, I will be, I think. I tend to think I will have to manage this for life, that I will never be 100% "safe" in thinking I am cured. But if I can manage it at this level, I will continue to be a functioning, tax-paying member of society again."
6. "I'm doing well these days after a long long haul. It scares me to post this because it always seems that when I brag about doing well, I have a little set-back. But I'm going to take my chances.
I was bitten by a tick in late 1993 and have been sick since. Doctors didn't know what the multiple EM rashes indicated, unfortunately, so I didn't get diagnosed until 2000 after multiple positive tests for Lyme, Babesia, Ehrlichia (HME). I'd had cancer treatment in 1997 which crashed my immune system and allowed these infections to flourish.
A combination of antibiotics and heparin injections, and complementary modalites including Rife and FIR sauna and energetic medicine have helped me return to a place of feeling better than I have in years. I don't consider myself "cured" --at least not yet-- but I feel really good.
My white blood count has returned to a normal level after being abnormally low for the last six years -- and I've finally begun to regain weight and am now back at my old pre-illness "fighting weight". My oncologist was pleasantly surprised at my last couple of check-ups by both of these events.
The things that helped me most but not necessarily in the order of importance:
1. 4 months of oral doxy (perhaps targeted ehrlichia and borrelia)
I took several other antibiotics including IV rocephin (4 and 1/2 months) but they just didn't seem to help at all.
2. 9 months of heparin injections.
It didn't seem to be doing much during the treatments and I wanted to quit the whole time I was on it. My patient LLMD listened to me whine and encouraged me to stay on it. Boy am I glad he did.
Unbelievably, it seems to have cured a long-standing chronic gastrointestinal inflammation that contributed to my overall illness. This wasn't what I expected but was a tremendous boost to my health and helped me avoid major surgery. There is information on the internet about this effect of heparin if you are interested -- just search for heparin and crohn's or ulcerative colitis.
3. Clindamycin and quinine and artemesinin -- apparently, babesia was a big problem for me because I started feeling better almost immediately. Mepron and zith were less effective or so it seemed.
4. Rife -- I was skeptical when I started this but could tell from the first session that it was helping me.
BTW, I'm going to be selling my Rife-Bare device and portable FIR sauna in the very near future so if anyone is interested, give me a holler and I'll give you a shot at it before posting it on ebay.
5. Antioxidants and flavanoids of varying types and shades (eat your veggies and fruits!)
6. Various types of energetic medicine including Healing Touch (like Therapeutic Touch), Qigong and TaiChi (helped with balance problems if nothing else) and other hot topics which I want go into here because I don't want the thread to turn into a free-for-all."
*********************************************************
And there's more!
I hope everyone will get some inspiration from these stories. BTW---- I know most of these people and have known them for years---- if not in person then as eFriends.
[ Because I either know some of these people or have seen future posting by them----- some relapsed. Some never posted again, presumably because they were still ' cured' or in long term remission. I posted on that site that I was having a wonderful remission due to bicillin injections but when I stopped them I relapsed.]
1. "I am 100% today!!
2. "I feel better than I have in 25 years (I'm 54). I have no pain anywhere, and ALL my symptoms are gone except some inflammation inside my right eye (and that's 70% better than it was).
I'm not positive ALL the bacteria is killed, but we live with a myriad of bacteria and viruses anyway and everything's balanced by the immune system."
3. "I would say that I am in remmission. I have been symptom free and off of meds for over 4 months now.
My main drug of choice was Zithromax. It gave me my life back.
But I also tried other antibiotics. I am severly allergic to Doxy so that was not an option. I have always done orals and never iv.
I was infected in April of 1999 and misdiagnosed with a spider bite. I got treatment almost a year later. It took about 3 1/2 years to get better.
I dont know if I am totally cured (I dont know if any of us truly know this) but I do feel alright.
I'll be happy if it stays repressed the same way the other microbes in our bodys are."
4. "However, after 2 years of orals, 10 months of rocephin, and continued orals after that, XXXX is off her heart meds, hasnt had a stroke or seizure, and is remembering, driving, ice skating, skiing and riding her horse on nearly a daily basis. We have mostly good days lately, which is really nice."
5. "A year ago, I could not move my left arm due to synovitis and multiple joint pain that kept me awake at night. I often had to retreat to bed from fatigue. I could not walk up my stairs without extreme effort. I had the full gamut of neurological involvement, from insomnia and cognitive processing problems, memory loss, hallucinations, psychiatric symptoms looking like PTSD, agoraphobia, panic disorder, and depression, shooting pains, facial and ear pain, hypoglycemia at coma levels, and much more.
Today I can walk for miles, ski for hours, do household chores, perform my work, and everyone who sees me remarks on how well I look. I would say I am 85%. I still have neuropathy and have to take anti-seizure meds and Mobic for inflammation. I have occasional memory black holes and word-flipping errors when stressed. I am on my third round of orals, but no anti-depressants, and my mood is just fine, thank you.
I went undiagnosed for four years, and when I finally came to XXXX and saw my same symptoms being discussed by many similarly afflicted, I knew I had found the culprit. I went to a LLMD, told him about my big red rash that I once thought was insignificant. He took a history of my symptoms, ran tests or looked at recent ones done by others --Western Blot, PCR, MRI, SPECT Scan, echocardiogram-- all confirmed my diagnosis of neuroborreliosis.
I am not cured entirely, but the level of my progress allows me to resume nearly a normal life--doing what I enjoy. I am not quite up to driving speed, but someday soon, I will be, I think. I tend to think I will have to manage this for life, that I will never be 100% "safe" in thinking I am cured. But if I can manage it at this level, I will continue to be a functioning, tax-paying member of society again."
6. "I'm doing well these days after a long long haul. It scares me to post this because it always seems that when I brag about doing well, I have a little set-back. But I'm going to take my chances.
I was bitten by a tick in late 1993 and have been sick since. Doctors didn't know what the multiple EM rashes indicated, unfortunately, so I didn't get diagnosed until 2000 after multiple positive tests for Lyme, Babesia, Ehrlichia (HME). I'd had cancer treatment in 1997 which crashed my immune system and allowed these infections to flourish.
A combination of antibiotics and heparin injections, and complementary modalites including Rife and FIR sauna and energetic medicine have helped me return to a place of feeling better than I have in years. I don't consider myself "cured" --at least not yet-- but I feel really good.
My white blood count has returned to a normal level after being abnormally low for the last six years -- and I've finally begun to regain weight and am now back at my old pre-illness "fighting weight". My oncologist was pleasantly surprised at my last couple of check-ups by both of these events.
The things that helped me most but not necessarily in the order of importance:
1. 4 months of oral doxy (perhaps targeted ehrlichia and borrelia)
I took several other antibiotics including IV rocephin (4 and 1/2 months) but they just didn't seem to help at all.
2. 9 months of heparin injections.
It didn't seem to be doing much during the treatments and I wanted to quit the whole time I was on it. My patient LLMD listened to me whine and encouraged me to stay on it. Boy am I glad he did.
Unbelievably, it seems to have cured a long-standing chronic gastrointestinal inflammation that contributed to my overall illness. This wasn't what I expected but was a tremendous boost to my health and helped me avoid major surgery. There is information on the internet about this effect of heparin if you are interested -- just search for heparin and crohn's or ulcerative colitis.
3. Clindamycin and quinine and artemesinin -- apparently, babesia was a big problem for me because I started feeling better almost immediately. Mepron and zith were less effective or so it seemed.
4. Rife -- I was skeptical when I started this but could tell from the first session that it was helping me.
BTW, I'm going to be selling my Rife-Bare device and portable FIR sauna in the very near future so if anyone is interested, give me a holler and I'll give you a shot at it before posting it on ebay.
5. Antioxidants and flavanoids of varying types and shades (eat your veggies and fruits!)
6. Various types of energetic medicine including Healing Touch (like Therapeutic Touch), Qigong and TaiChi (helped with balance problems if nothing else) and other hot topics which I want go into here because I don't want the thread to turn into a free-for-all."
*********************************************************
And there's more!
Thank you for posting this. I found it very interesting to see the
different treatment protocols that helped others.