Lyme Disease Support Group
Lyme disease is the most common vector-borne disease in the Northern Hemisphere. It is now one of the fastest growing infectious diseases in the U.S. Lyme disease is caused by infection with the Borrelia burgdorferi bacteria, and is primarily transmitted to humans as well as dogs, horses and other domesticated animals by the bite of infected ticks.
I'm currently being (under) treated for Lyme. Have no idea how long I've had it but had an awful pregnancy and my daughter is now 3 years old.
She was diagnosed with celiac disease at 18 mos but is otherwise healthy and as bright as a button.
She had her 3 year check up on Friday and as the pediatrician was going to draw blood to check her gluten antibodies I asked her to do a Lyme test.
Wow did she give me a hard time. She acted like I was nuts when I told her I have it and I can't get rid of it/don't know how long I've had it etc. She said "I'll do it but I'm not happy about it."
Then I had to return on Monday with my older daughter (very healthy) but fever all weekend and the ped opened the door and looked at me like "Here's that nut-job again" Even my husband noticed.
What the heck is wrong with people? I feel like docs would be more helpful if I had something awful like hepatitis or HIV, they'd be dying to treat me and my kids..
Sorry, thanks for vent everyone..
She was diagnosed with celiac disease at 18 mos but is otherwise healthy and as bright as a button.
She had her 3 year check up on Friday and as the pediatrician was going to draw blood to check her gluten antibodies I asked her to do a Lyme test.
Wow did she give me a hard time. She acted like I was nuts when I told her I have it and I can't get rid of it/don't know how long I've had it etc. She said "I'll do it but I'm not happy about it."
Then I had to return on Monday with my older daughter (very healthy) but fever all weekend and the ped opened the door and looked at me like "Here's that nut-job again" Even my husband noticed.
What the heck is wrong with people? I feel like docs would be more helpful if I had something awful like hepatitis or HIV, they'd be dying to treat me and my kids..
Sorry, thanks for vent everyone..
My husband is a lawyer and deals with doctors professionally all the time. We didn't just fall off the turnip truck. But we didn't expect to be treated as such.
They asked "To what degree had my husband's condition improved?" "Do you mean from when he could hardly walk, stand up, move, etc? That would be 90% better". So, they said, "You are doing well and have been successfully treated." We wanted to say "Are you deaf? He has LYME- and you guys couldn't figure it out and NOW he's being treated," but for we didn't. We were rather stunned.
They were not curious in the least , asked no questions about Lyme or the test, and couldn't get wash their hands of us quicker- although we had no intent of coming back.
It was an eye opener.
Hang in there. I wish you & your family well, Claire.