Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Any handy gadgets you guys wish existed (or were accessible) for coping with lupus symptoms???
And yes I know EVERYONE wants a cure but just for the sake of this thread think of something else to invent:)
I would invent a bracelet that resets every morning and starts beeping when I have had 20 minutes of sun (at medium strength) or the equivalent! You could set it to give you a warning that your quota is coming up soon and even get it to calculate differently when you have been good and are wearing suncream! I need one!!
I also need a nighttime lotion that smells fantastic that will get rid of the maddening nighttime itch. It has to work everytime and for all people! Oh and if we are not thinking of "medications"...
Then I am inventing magic non-itch sheets. When you slip into bed your skin is magically cooled and soothed and DEFINATELY NO itches!! (except for that one foot you stick out for equilibrium lolol) It is guaranteed to work for EVERYONE EVERYTIME :)
And yes I know EVERYONE wants a cure but just for the sake of this thread think of something else to invent:)
I would invent a bracelet that resets every morning and starts beeping when I have had 20 minutes of sun (at medium strength) or the equivalent! You could set it to give you a warning that your quota is coming up soon and even get it to calculate differently when you have been good and are wearing suncream! I need one!!
I also need a nighttime lotion that smells fantastic that will get rid of the maddening nighttime itch. It has to work everytime and for all people! Oh and if we are not thinking of "medications"...
Then I am inventing magic non-itch sheets. When you slip into bed your skin is magically cooled and soothed and DEFINATELY NO itches!! (except for that one foot you stick out for equilibrium lolol) It is guaranteed to work for EVERYONE EVERYTIME :)
There's an invention to make you feel better about yourself even if you aren't feeling well. It's lupus-inspired and actually on the market already -- Sara Gorman's Pillbags. A does of style can go a long way.
Wouldn't it be wonderful to have something to gently massage legs or back during sleep? I'm pretty sure one of the reasons I wake up so achey is because I've been still.
sparkly
LOL...At the hospital where I work, we tell parents to give this combination to kids all the time for stomatitis, but never thought about using it myself. Isn't that just funny? I will have to find some mylanta (I've got the benadryl). I have to say, the L-Lysine has been really helping keep big mouth sores at bay, but I still notice the small ones anytime I eat anything citrus or spicey.
Thanks for posting!