Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
M.
That is the single hardest thing I've had the deal with - seriously. The. Hardest.
I was a super-go-getter-on-crack before I got sick. When I got sick, my body -made- me slow down, but as soon as I started to feel a tad better - I wanted to resume my old schedule.
Don't do what I did. I felt guilty about taking it easy when I felt "meh" to "ok, I can probably deal with it if I push it" and before I knew it - I hit the wall and ended up in the hospital for a VERY long time. It literally took years to get back on my feet (literally).
Now - I have to look at it this way. I have a set amount of stuff I can do each day or not at all. Those are my choices.
Some things that might help: (Obey this rules if NOT flaring)
Do one house chore per day - not all at once.
Do one errand every other day or every 3 days - not all at once.
If you're given the opportunity to rest - do so (like the sign in/sign out thing). Why? So you don't have to "call out" on your job.
DO exercise - at least 15-30 minutes even if it's only stretching. Gotta get that blood flowing.
Take mini-breaks (if you can) to sit/lie down/ or drink some water. Even if it's just 5-15 minutes - it can help.
If you're flaring - don't do much at all. Stretching for 5 minutes would be my personal limit. During a flare.
These are not hard-n-fast rules. They're MY rules that I've had to develop the hard way.
Listen to your body. Don't push yourself. And, look for your own "restful opportunities".
Oh, and I know it can be annoying to have others tell you that you're pushing yourself too far - but often times, they see things much clearer than we do because we're simply too close to the problem.