Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
I haven't been offically diagnosed with lupus (yet!) but I too suffer from frequent urinary infections (and even severe kidney infections earlier this year). Whenever I test my urine it is nearly always positive for protein and leukocytes (infection).
In my search for answers, I found that UTIs are common in lupus, especially if you have kidney involvement- so may be worth the appointment with the urologist to check you kidney function. Also I think becuase of low immunity people are more suseptable to all kinds of infection.
The way I've found to control it, is drinking at least 2 litres of water a day, plus 250ml of cranberry juice (or cranberry capsules food supplement), and my doc has also put me on a low dose profalactic antibiotic which seems to help as whenever I forget to take it for a few days the UTIs come back!
I have had UTI's, seems like forever! Part of Lupus and some Lupus meds. I have not had a bath in a few years(I shower) and have to use unscented soaps etc. I drink alot of Cranberry juice. My Rheumy will send me to a Uroligist if it gets real bad and or happens too often. Knock on wood, its been at bay so far.
Take Care
Sylvie