Hmmm. I have never really heard of that but that doesnt mean that its not lupus related. There are alot of weird symptoms that we can have that not even the dr.s are aware of. I would try to see if you are eating anything similar at the times that this happens. There are certain foods that can trigger an inflamatory response (tomatos, eggplant, potatoes, beets, alfalfa sprouts, and a few others) us and maybe you are eating on of these which is causing the reaction. See if you can remember what you were eating during the times this happened. You may also be having an allergic reaction to something your eating. Definitely speak to your derm about this. Let us know what they say. Hope you figure out what this is from.
Hugs

I would love to hear more about the foods we eat. I have read that night shades (tomato, potato, eggplant, and beets) are not bad for lupus. There are some people that have an intolerance or allergy to them and they get inflammation. However, I have heard that alfafa sprouts are a definite no no for lupus. They are in a different category. has anyone else heard about these foods?

One more thing...
For me the foods that create hot skin and heat reactions are spicy foods.

hard to say,cause there is so much i am supposed to avoid cause of the addition of chrohn's..ugh..think hard, if any meds were different thatday or even a different liquid..sometimes even if you have been on a med for a few days,you can have a reaction..it doesn't have to happen right away..then again,it could be something else completely different! sorry,not much of a help..just mention it to dermo..good luck!sometimes it can be the detergent you have used on your clothes..we bought a new bedspread and i had hives everywhere!!!don't make yourself crazy,like i just did..:)

Thank you for all of your responses. I was trying to think what I was eating each time this has happened. Last time it was peas with salt and this time it was cucumbers with salt. I am wondering if it could be the anti-caking ingredient in my salt. My next appointment with my dermatologist isn't until July 12th.

Since alfalfa sprouts are not good for lupus, what about alfalfa pills?

Hi,
I would personally not take anything that has alfalfa in it. I also would be very careful about any type of herbs/supplements that you take as several of them can actually cause us more harm then good. I have made that mistake before and it was horrible. You never ever want to take anything that boosts the immune system which means avoiding immune boosting supplements like Airborne, echinacea/golden seal, grapeseed extract, etc. The last thing we want to do is boost our immune system. As for foods...did you say you read that tomato, potatoe, nightshades, etc are NOT BAD for lupus? If so, the place you found that information from is not correct. These things have been shown to exacerbate or cause flare ups and should be avoided. I have also made this mistake before and got extremely sick with a flare up from eating BEETS for 4 days. Not everything you read on line is correct or safe. The best place to get the proper info on foods/supplements/herbs is to ask your rheumy about taking them before you try them. Most likely they will say NOT to take them. Some can actually be toxic for us. Some people do fine taking certain herbs/supplements/diets while others dont. It all depends on how your body reacts to these things.

You mentioned the anti caking ingredient in the salt which made me think HMMMMMM. That is possible because I just realized that any time I eat something with MSG in it I get a hot flush, red skin and a racing heart. Maybe you should stop eating that salt and buy a natural kind without anything extra in it and see if that makes a difference. The peas and cucumbers shouldnt typically cause a lupus reaction and it doesnt happen instantly (usually). This sounds more like an allergic reaction to something and you may have figured it out. The salt! Keep us posted on what the dr. says and hope you are doing better. PLEASE PLEASE PLEASE speak with your dr. first before trying any supplements. I dont want you to go thru the same thing I did making myself sick as a dog from something I was told (not by dr.s) would be helpful.
Hugs

Chocolate makes my face bright red. It only takes a few minutes. Also, eating chili-spicy foods makes it red and hot, but it's not as dramatic as chocolate.

Alfalfa sprouts contain L-canavanine. Most of the L-canavanine is found in the seeds, but it is also present in the sprouts. The reason L-canavanine can worsen or even induce lupus is that it binds to enzymes. It binds to nearly every enzyme that utilizes arginine. That would include the pancreatic protease DNase 1.

I have posted a Science Daily article previously that shows pictures of NETS that are created in a lupus patients bloodstream because they lack the enzyme DNase 1. DNase 1 is an enzyme found in the pancreas. It's job is to break down DNA and proteins BEFORE they enter the blood in addition to degrading any leftover cellular debris in the bloodstream. If you would like to see a picture of this, you can go to Yahoo and type in "Rescue Nets for Lupus Patients." It talks about this enzyme in the last paragraph.

The lack of this enzyme has been shown in studies from around to world to be a causative factor in lupus. For instance, when this enzyme is removed in mice, the mice developed lupus. In fact, every single symptom of lupus can be traced back to this missing enzyme. Just name a symptom and I will demonstrate.

not sure if you have already but start a food diary, and write down your feelings/symptoms of that day. A strict one, write down everything you eat for each meal. It can be tedious and a bit time consuming but its well worth it. Ive kept one for about 3 weeks now, and looking back at week one Ive found that my rash that was really itchy and hot began to subside when I ate less dairy, and is now virtually gone with no dairy in my diet. We all react differently to different foods, and the modifications we make to our diets can take some time to reflect in our reactions.