Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Hi - anyone else who has had this or having this - would love to hear how its helped or not helped and how it has affected you...thanks....... and would also like to hear from people how long and how many treatments they had to have.....
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
Central Nervous System Manifestations
TABLE 6
Neurologic Manifestations of Systemic Lupus Erythematosus
Psychosis
Seizures
Organic brain syndrome
Stroke
Cognitive function abnormalities
Transverse myelopathy
Mononeuritis multiplex
The central nervous system manifestations of systemic lupus erythematosus can present in many forms and are often difficult to diagnose (Table 6). No gold standard diagnostic test currently exists. Characteristic abnormalities are frequently found on brain MRI, lumbar puncture and electroencephalogram. Psychosis and seizures are usually easy to diagnose and respond well to antipsychotics or anticonvulsants, as well as to corticosteroid treatment for systemic lupus erythematosus. However, many patients with systemic lupus erythematosus present with cognitive function difficulties, making it a challenge for the physician to differentiate between what is related to active lupus erythematosus, what is related to corticosteroid treatment, and what may be related to depression or chronic fatigue syndrome. Fibromyalgia, a musculoskeletal syndrome characterized by generalized pain, fatigue and a variety of associated symptoms, is found in as many as 30 percent of patients with systemic lupus erythematosus and is frequently associated with chronic fatigue. Patients with central nervous system manifestations of lupus erythematosus who present with status epilepticus, organic brain syndrome or coma can be treated with intravenous methylprednisolone pulse therapy. Patients with severe or resistant symptoms may also require treatment with intravenous cyclophosphamide and/or plasmapheresis. However, it is usually necessary to rule out other conditions that may mimic central nervous system manifestations of systemic lupus erythematosus, including infection and toxic metabolic states.
Hope this helps some. peace and love ... Kyle Anne
My first Rhuematologist had me in for pulse therapy on a regular basis my first year, due to severe rashes and arthritis pain. I usually went in once/month sometimes every other month.
My sessions were 1 hour for 3 days as an outpatient, so they just bandaged up the hep lock and I went in the following days.
For me, it was of great benefit, but not without it's side effects. Mine weren't all that major, or of concern. I put on weight (Not tons, but a little each time). Which for me was a good thing, as I was underweight as it was.
I could do without the weird cravings though. (Ritz Bitz sandwiches by the boxful, and oddly enough, 1KG bags of icing sugar). I know...ewww. LOL.
My new Rhuematologist, I've been seeing for the last 4 years, has not sent me in for pulse since. It was just used too liberally with me in the past. I'm not doing bad now, but I'm not all that great either. But that's another story. LOL